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Questioning Diagnosis

ILOVEOMC

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ILOVEOMC Enthusiast
ILOVEOMC
Posted

:D Hi,

This is my first post after lurking here for several months. I am impressed by the people here and have learned alot. My guestion is about my child . After stomach hurting for several months the Dr. did a scope and biopsy and diagnosed Celiac based on the findings. The only problem I have is that the week before the scope and biopsy he had the stomach flu with fever and I wonder if that could have made the findings look like Celiac. They did blood work following this and the only elevation was the anti gliadin IGa . Only up a little. 5.4 from the acceptable 5.0. Hope you all can shed some light on this and help us out. Thanks!

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KaitiUSA Enthusiast
KaitiUSA
Posted

This is a duplicate post. Please do not respond here. The other post is pinned in the Pre Diagnosis section. Thanks

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    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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