Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medicare And Special Diets


Portageegal

Recommended Posts

Portageegal Newbie

Oh, Brother. I am in a pickle. I am on disability and living in a rest/retirement home. I have very little control over what is prepared for meals. Do any of you "older" people know if there are any allowences made for a special diet? The gov't. allows us $60 a month for our expenses and I can't see how that will stretch if I have to buy special foods. I have been trying to find out online about whether rest homes have to prepare special food for you or not. All I can find is that they have to for low salt, and diabetes. As it is they complain about how much they spend on food here. AGGHHHHHH !!!!!!! I'm screwed. :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

No pickles, don't worry. :)

The law says your home must accommodate your diet - it's a medical nessesity, just like the diabetic diet. I expect the meals they prepare will be rather bland though, you'll want to add your own bread, treats, etc...

Now will SSD pay for the extra (gluten free) food? Hmmm. Interesting, I'm on disablity too and I never even thought of that. I'll go poke around the social security website, see what I can find.

(anything not to have to call the ss office) :P

Portageegal Newbie

(anything not to have to call the ss office) :P

What's the matter? Don't you like holding a phone at your ear forever listening to crappy music ?

:blink:

Carol

LKelly8 Rookie

Well, the SSD and Medicare websites are a bust. I did email a query to SSD about special diets and coverage but odds are slim I get a reply that's helpful.

You may have to bite the bullet and contact SSD. I'd try SSD/medicare first if I were you, as bad as they are, nothing's worse than the medicaid office {shudder}

(As far as I know the social security website did not feature muzak - although I did rip my computer speakers out just to be safe. :lol:)

Portageegal Newbie

Oh yeah, I've been to the websites. BIG waste of my time. I will have to call them then or have the social worker here do it for me. Thanks for you time and response.

Carol

judy05 Apprentice
Oh, Brother.  I am in a pickle.  I am on disability and living in a rest/retirement home.  I have very little control over what is prepared for meals.  Do any of you "older" people know if there are any allowences made for a special diet? The gov't. allows us $60 a month for our expenses and I can't see how that will stretch if I have to buy special foods. I have been trying to find out online about whether rest homes have to prepare special food for you or not.  All I can find is that they have to for low salt, and diabetes. As it is they complain about how much they spend on food here.  AGGHHHHHH !!!!!!!  I'm screwed. :huh:

<{POST_SNAPBACK}>

When my Mother was in a nursing home they admitted a man on a gluten free diet, they bought special food for him, I don't know if it cost the family extra, they should have to accomodate you, just like they do for diabetics. I know they have sugar free foods because my mother received them, she had diabetes, wasn't on medication, controlled by diet.

As a nurse I worked in long term care and the Glucerna and other diabetic foods did not cost extra. You need to talk to the doctor who can order a consult with the dietician who is in charge of the meals or call her yourself. If you don't get any response, call the ombudsman for your state and make a complaint. They have to post the number somewhere in your facility where it is available to you.

judy05 Apprentice
Oh, Brother.  I am in a pickle.  I am on disability and living in a rest/retirement home.  I have very little control over what is prepared for meals.  Do any of you "older" people know if there are any allowences made for a special diet? The gov't. allows us $60 a month for our expenses and I can't see how that will stretch if I have to buy special foods. I have been trying to find out online about whether rest homes have to prepare special food for you or not.  All I can find is that they have to for low salt, and diabetes. As it is they complain about how much they spend on food here.  AGGHHHHHH !!!!!!!  I'm screwed. :huh:

<{POST_SNAPBACK}>

Just wanted to add something. Don't pay any attention to them when they complain about their costs, they are making plenty of money, you wouldn't believe how much! They employ people and pay them the least amount they can get away with. Another source in nursing home is the Social Worker. You should have one assigned to you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Portageegal Newbie

I talked to the Massachusetts medicaid office and they said that a rest home

does NOT have to supply gluten-free food for me. I guess they figure I could just not

eat bread or something. I talked to the ombudsman the other day and she

is going to look into it further for me.

Carol

judy05 Apprentice
I talked to the Massachusetts medicaid office and they said that a rest home

does NOT have to supply gluten-free food for me.  I guess they figure I could just not

eat bread or something.  I talked to the ombudsman the other day and she

is going to look into it further for me.       

Carol

<{POST_SNAPBACK}>

Another source would be the Americans for Disability Act, they have used it in schools. Please plug away at it, they have to accomodate you. I would also have your physician write an order for you, they have to act on that. This is the only way we are going to get in their face and get them to accomodate us. If I can do anything to help you, let me know. We may be in your shoes some day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.