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Stemack

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Stemack Newbie
Stemack
Posted

Hi there,

I didn't realize communities like this existed until about 5 minutes ago when I stumbled across the forum, so whomever created this thank you! I think it is going to help me a lot now. I'm a diagnosed Celiac from birth now 22 years (I know its not that long aha) and have been in somewhat denial on and off over the years and have not stuck to my diet due to not having any symptoms at all? This normal, but I've decided it's not worth the risk and am going to try and go straight onto a gluten-free diet starting now.

Looking forward to joining in on the community.

Steven.

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cahill Collaborator
cahill
Posted

Hi there,

I didn't realize communities like this existed until about 5 minutes ago when I stumbled across the forum, so whomever created this thank you! I think it is going to help me a lot now. I'm a diagnosed Celiac from birth now 22 years (I know its not that long aha) and have been in somewhat denial on and off over the years and have not stuck to my diet due to not having any symptoms at all? This normal, but I've decided it's not worth the risk and am going to try and go straight onto a gluten-free diet starting now.

Looking forward to joining in on the community.

Steven.

Welcome to the forums Steven :)

2johndeereboys Explorer
2johndeereboys
Posted

Hi Steven!

B)

I am new here and have not be formally diagnosed yet. I had a Celiac Panel drawn up almost 2 weeks ago and I am STILL waiting on the results! So as you have probably figured out I have not adopted the gluten free diet as of yet. I am still having symptoms that I am convinced are from celiac disease so if I get a negative I will be shocked!!

Anyway......welcome and I agree this is a FANTASTIC place!!! I have learned so much in my short time here!!

Take care and I look forward to getting to know you!!!

:D

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    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

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    • Scott Adams
      Hypothetical question about antibodies

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      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
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