Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting 3Rd Week Of Gluten Free Lifestyle


UpbeatPete

Recommended Posts

UpbeatPete Explorer

I can certainly tell a difference in my overall health since going gluten free; however, I notice somedays are just a lot better than others.

I know when a lot of people first start their gluten free diet, they must also go lactose free. As I posted on here before, I don't have stomach problems, but more neurological; headaches, light sensitivity, muscle fatigue and weakness, tiredness, etc. For a few days I was making major strides to normality; however, since Sunday I seem to have taken a couple steps back. My sister and brother-in-law made a birthday lunch for me on Sunday;

grilled chicken with only salt and olive oil (on foil)

grilled corn on the cob (on foil)

peppers in an iron skillet (which I kindly declined as I have saw that eating something prepared in an iron skillet may not be the best idea)

Gluten Free Cake (which made me pretty nervous to try)

And Homemade Ice Cream

Could lactose also cause neurological problems as well? Or could it be CC from something else?

I am very pleased with the progress I have made so far, but was just curious as to whether this was normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

It sounds like your symptoms are similar to mine. I have to ingest a fairly large amount of gluten to get digestive symptoms but the slightest contamination brings back the muscle aches and the neurological symptoms. Everyone is different but I have actually been digesting dairy and corn better than ever before since I went gluten free.

If the meal was prepared at their house then it could be a contamination issue - my guess would be the homemade ice cream or the gluten free cake. Was the cake baked in a non-stick pan previously used for gluten cakes? Was the ice cream made from a cooked custard base that was cooked in a non stick gluten-contaminated pot? Was it made in an ice cream maker that has previously made cookies and cream ice cream? Were either of them stirred with a contaminated wooden spoon? That would be enough to bring on several days of fatigue, brain fog and soreness for me.

UpbeatPete Explorer

Thanks for the reply Poppi.

It is interesting that you mention corn. I was eating corn chips, supposedly gluten free for a few days. I did notice that I started feeling even better when I stopped eating them. Then on both Saturday and Sunday, I had corn on the cob. My mom made a slight mistake boiling the corn in the pot she usually makes pasta in. I am guessing I might have gotten some CC from that. Is there a chance that I need to take a litte time away from corn as well?

Since they did prepare it at their place, there is a small chance of CC. I just asked her what type of cake pan she used and she said one with a teflon coating, could that be a problem? Can plastic spatulas and cooking utensils hold on to gluten residue?

Poppi Enthusiast

Yes, yes and yes.

You might need a break from corn. Try avoiding it for a couple weeks and then trying it again.

The teflon pot is the most likely culprit. I had to get rid of all my pots and baking pans and replace with with stainless steel and glass as I was getting glutened from the residue that just can't be washed out of the pots.

Plastic and wood utensils can hold on to gluten as well.

UpbeatPete Explorer

Thanks Poppi

I will definitely give up corn for a little while, along with lactose as well. I hadn't thought of plastic untensils until yesterday, so I will be making that change as well.

Thanks for your help Poppi! I am learning more and more each day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.