Oats

[soccermom]

I have a question about oats. I have never had a digestive reaction to gluten-free oats, when I have had the occasional cookie or gluten-free granola. Recently, I decided that I needed to add some healthy whole grains back into my diet and started eating gluten-free oatmeal every morning. On the sixth day, I had such terrible brain fog I could barely function.

So now I know I cannot eat oatmeal every day. I have gone to every other day and have had no problems. My question is, even though oats are gluten-free, I know they contain a protein similar to gluten. Is this damaging my intestines?

[love2travel]

Just attended an excellent lecture by a leading Canadian celiac expert, a gastroenterologist, who said that we must not have any oats, even oats that are guaranteed to be gluten-free and produced at a dedicated gluten-free facility, for TWO YEARS following celiac diagnosis. She said we must give our gut a long time to heal. She believes that there may be no actual damage done akin to the damage done by gluten but oats can be hard on us regardless.

[Roda]

I can't tolerate them at all and can not eat any gluten free products that also produce oats due to cc from them. In my case I do believe it was causing me damage. Last April I had a repeat scope because out of the blue I started having symptoms (total 8 months last year). On my scope it showed esophagatis, gastritis, stomach ulcer and imflamation in the small bowel. Villi were not blunted though. The doctor though all my problem were from the ulcer. I did treat it and heal it but my other symptoms remained another 4 months. The doc I think was thinking refractory and wanted to put me on steriods but I wouldn't do it. Thats when I eliminated all gluten free products. That combined with creon I was better in three months. Now anytime I eat Bob's Red Mill products my symptoms return by day two (I did an experiment). I've also become more sensitive to regular cross contamination also. There is an avenin sensitivity and avenin sensitive enteropathy

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[thleensd]

The latest research I've read says to wait until your gut is healed (I've read one year or two years), then only take oats in small quantities under the supervision of a doctor. Then they may be tolerated in small amounts.

Plenty of people don't have a problem with them... but many do.

I just got back from my GI appointment (year two follow-up), where my doctor agreed that oats can be a problem for some with Celiac (and therefor for some, oat cross-contamination can be an issue).

Try life without them for a while, and see how you feel. If you need a warm cereal breakfast, maybe you can find some that is rice or buckwheat based?