Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


Boss'Wife

Recommended Posts

Boss'Wife Rookie

Hi all I am from SE Ks and was just diagnosed last Tuesday with Celiac....Lets just say this first week has been rather difficult. Not sure what I can or can't eat or drink. I love Dr. Pepper but According to the food list I found I can't have carmel coloring ugh and it's in everything... Any help would be greatly appreciated.

Thank you ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten free overseas Apprentice

Dr. Pepper is gluten free. This is the info from their web site:

Q: Does Dr Pepper contain gluten?

A: All of our products are considered gluten-free. Note: All products, which contain High Fructose Corn Syrup, may contain trace amounts of corn gluten. According to the Celiac Sprue Association, corn gluten is not harmful to people with Celiac Sprue disease. We encourage consumers with specific questions about Celiac Sprue to contact the Celiac Sprue Association at www.csaceliacs.org.

So... if corn doesn't bother you, go ahead and drink Dr. Pepper.

kareng Grand Master

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

psawyer Proficient

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

All true. I'll add maltodextrin to the list of myths--its gluten-free for sure. And wine is safe, no matter how many times you hear the myth about how the barrels are sealed.

Welcome to our community. :)

psawyer Proficient

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html

A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link This makes shopping MUCH easier.

FDA foods are required to list wheat - it cannot be hidden.

Rule #1: Never eat anything without reading the label first.

Rule #2: Consistently check labels, even of your favorite products, as product formulations can change.

Rule #3: If you are unsure of an ingredient, or the company's policy on labeling, call the phone number on the back of the product or email the company.

Hope this helps.

kareng Grand Master

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

This is all very well & Good but there is still a wheat stalk on my license plate!

gluten free overseas Apprentice

SERIOUSLY??!!! I've been avoiding tea from teabags for NOTHING???

This was a very good thread--the previous info I read (new to the gluten free diet) was outdated, apparently.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Yup Apprentice

To help you with recipes google Stephanie O'Dea. She made one gluten-free recipe for 365 days while using her crockpot.

Paula

psawyer Proficient

This is all very well & Good but there is still a wheat stalk on my license plate!

Okay, DO NOT eat your license plate. There are much better dietary sources of iron. :blink:

love2travel Mentor

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

If it makes you feel any better license plates in Saskatchewan still sport several stalks of wheat!

  • 2 weeks later...
Langenke Newbie

Welcome to our community!

I have joined a few of these support groups online, and it helps you feel not so alone. I drink mostly tea, water, nut milk, and clear sodas. All sodas should be fine however. Just some advice I wish so badly someone would have told me when I was first diagnosed.....get a really good fiber supplement. I get the kind that is fruit flavored and chewable. It is actually a nice treat everyday for me. Celiacs do not get the recommended amount of fiber as a result of our diet usually (No wheat, rye, oats, barley etc). The lack of fiber landed me in the hospital with an intestinal blockage about a year ago a few months after being diagnosed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.