Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Lactose Intolerance


Greenling

Recommended Posts

Greenling Newbie

I'd appreciate input from those of you who have lactose intolerance/eat dairy-free. I was diagnosed three weeks ago with Celiac, but have been eating Gluten-free for 8 weeks. I'm now trying to determine if I'm processing dairy okay or if I should eliminate it for a while (I was dairy-free for the first four week, then added it back in). I seem to react to it sporadically.

I spoke with a dietician about fatigue and working out and she suggested I up my protein intake with a Gluten-free whey protein powder. I've been mixing it into my green smoothie and it's helped with energy, nutrition, etc. I haven't seemed to react to it in any way. But last night I had butter and shredded cheese on a potato and had diarrhea. This morning I had skim milk and same result. So, is it possible that I'd react to milk, cheese, and butter, but not the whey protein powder? Is this a casein reaction?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

With lactose, it's possible that a little bit is okay for you but eating all those things at once was too much. When I was just lactose intolerant I had that problem. I could get away with a little cheese or butter about twice a week but if I ate dairy in multiple forms I would pay for it. Of the things you ate, the milk is the highest in lactose. The cheese and butter would be lower lactose foods as is most yogurt. I don't know anythign about the whey protein powder. I never got to the point of being lactose tolerant enough to handle milk or ice cream. For a while I could eat yogurt every day. In my case I ended up developing a milk allergy, which is NOT typical. I think most people go on to either heal enough to eat it again or they just stay dairy free. IMO it is too soon for you to be testing milk. I would drop all milk for at least 6 months and then try some low lactose forms. This is an individual decision of course and if you know whether you have villi damage or not could play a part in your decision of how long you neeed to avoid the dairy.

Greenling Newbie

Thank you for your reply, I appreciate your time. I am planning on removing milk and other dairy (I just miss my skim milk!) for a while; perhaps I can re-test at the end of the year. But I do want to keep the whey protein powder if I can. If I don't notice a reaction to it, can I assume all is well with the whey protein powder? or does it cause a hidden reaction as gluten can? If it helps, I did not test positive for any dairy allergy.

Greenling

GlutenFreeManna Rising Star

Thank you for your reply, I appreciate your time. I am planning on removing milk and other dairy (I just miss my skim milk!) for a while; perhaps I can re-test at the end of the year. But I do want to keep the whey protein powder if I can. If I don't notice a reaction to it, can I assume all is well with the whey protein powder? or does it cause a hidden reaction as gluten can? If it helps, I did not test positive for any dairy allergy.

Greenling

If you are sure it's not causing any reaction than it's okay to keep it, IMO. What you might try doing is dropping the protein powder (along with all dairy) for just two weeks and then trying the protein powder again when you are feelign good to be sure that you have no reaction. It may be something where it only makes you feel a little off, but you wouldn't notice unless you dropped it all and then tried it again. If you are really wanting the protein there are other non-dairy protein powders out there. I can't help you with the brand names (maybe make a new post to ask?) but I know I have seen someone mention a protein powder that is sunflower seed or pea protein based instead of milk. Chia seeds are good sources of protein as well.

Greenling Newbie

Thank you so much! This has helped me out a lot. :)

mushroom Proficient

You can get a hemp protein powder from Tader Joe's (if you have one) to substitute for the whey.

Greenling Newbie

Sadly, no Trader Joe's nearby. But I think I can find a replacement protein powder if I have to (so far, I have had no problem with the whey). I'll keep hemp in mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

I ordered Rice Protein Powder from (Company Name Removed - They Spammed This Forum and are Banned). It's not the best tasting, but it's gluten and lactose free and is also vegan, so it does the job.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.