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Celiac Testing And Insurance

mybellemichelle

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mybellemichelle Newbie
mybellemichelle
Posted

I'm new to this celiac and gluten free stuff. Last week, a nurse practitioner suggested that I could have celiac and that we should check into testing. I have United Healthcare insurance (through my dad). Does anyone have United or know if they cover celiac testing; I read on a few threads here that celiac is an automatic coverage denial with United (which is totally bogus), so I don't know where they would stand on testing.

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sa1937 Community Regular
sa1937
Posted

I'm new to this celiac and gluten free stuff. Last week, a nurse practitioner suggested that I could have celiac and that we should check into testing. I have United Healthcare insurance (through my dad). Does anyone have United or know if they cover celiac testing; I read on a few threads here that celiac is an automatic coverage denial with United (which is totally bogus), so I don't know where they would stand on testing.

My daughter has United Healthcare through my son-in-law's job and they did cover her celiac panel in Aug. 2010. How much I don't know as she obviously had to cover the co-pay. I'd definitely check to make sure the plan your dad has would cover that as I really don't know how group insurance works...coverage might vary from employer to employer. She did not go on to get the endoscopy/biopsy but went gluten-free after her testing knowing that I was already diagnosed.

kareng Grand Master
kareng
Posted

I have United & they paid for the blood work and the endo & colonscopy. I had to pay my deductable/co-pay. This differs by your actual coverage. You have to go to the approved docs and use the approved lab. The doc office has to give them the right codes (reasons for the tests). They also paid for my boys to have the blood work based on family history of a genetic disease.

I think the blood work (we did not do genetic - that they may not pay for) was less than $300 per person. I'll see if I kept that in folder and tell you later if I have it.

kareng Grand Master
kareng
Posted

OK...cost..

One set was $190 & one $335. The first was $335 & he ran a "celiac panel" plus the ones I gave him from The Celiac Center at U of Chicago. The second, cheaper one, had a lot less extra bill padding test. He just ordered the ones by name from the Celiac center. I think the labs run alot of nonsense to make a bigger charge. The ones for my kids, he wrote out the ones he wanted & they only did them (3 or 4). Couldn't find those old bills

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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