Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Reaction To Gluten?


lynn472

Recommended Posts

lynn472 Newbie

So, I have had some mild digestion issues for a while now that seem to come and go with no real reason. Sometimes feel constipated, sometimes the opposite. I tried going gluten free for short periods to see if it made a difference and didn't really notice anything, but since my symptoms come and go anyway, maybe I just didn't do it for long enough. I also don't really eat wheat that much to begin with.

Spicy foods don't bother me at all. Sometimes dairy makes me ill, sometimes I eat a whole bowl of ice cream. I used to get heartburn but that went away on its own and I haven't had it in a while. I get random intense nausea that will last for a second and then disappear.

I've been tested for a whole slew of allergies and I'm not allergic to any foods. I know I have a vitamin D deficiency that I noticed because I was sleeping through most of winter, but I'm pretty pale and don't get out much... my blood sugar is normal, I get a decent amount of exercise and am a healthy weight, my blood pressure is healthy, I try to eat a lot of fiber etc etc... I'm totally healthy except when I randomly feel awful, but I don't have health insurance right now and I can't seem to find any clinics near me so I can't get tested for anything. My family does have a history of colon cancer which worries me... but I feel like at 26 I am too young for that...?

A few weeks ago I felt really sick, I had been eating out a lot and after this one meal and a few drinks I felt like the food was just sitting there in my stomach, and I had to go lie down...when I woke up I felt fine, but the next day my whole stomach just felt sore... a dull achey feeling kinda like how your muscles feel after a work out. Not to be graphic but I had this weird thin poop for a day which kinda freaked me out. I had just moved to a new city and was a bit stressed. I didn't seem to be blocked up, didn't feel bloated, and then it went back to normal on its own, and I started feeling better again, but I've heard this could be a symptom of celiac, so I decided to give the diet another go just to see what would happen.

I wasn't too strict about it and ate wheat a few times over the next two weeks, a bowl of cereal or a cupcake here and there, and again didn't really notice a change. I didn't feel bad, but I didn't feel really great either. Maybe I was more tired than usual but I might have been lacking in carbs. I did get a strange head/neck ache that hasn't gone away but I think my neck muscles are just tense. I continued to have a wide variety of poo. Some of it had these little white or black dots in it, really small ones, which was bizarre. So I figured that maybe it wasn't celiac after all that was causing this weirdness since it was still happening. I went out and had a giant cupcake and a beer.

A few hours later I started feeling really weird, my hands and arms were tingling like they were falling asleep and my heart was pounding really loudly and I felt dizzy. It was kinda like a panic attack except I didn't feel anxious... well until it went on like that for an hour, but that would make anyone anxious I think. Today I feel a bit moody and tired, but it could be from lack of sleep since I couldn't fall asleep after that. I thought I would be constipated but I'm not... probably because I drank a million glasses of water while trying to calm down last night. My stomach is a bit gurgly but doesn't hurt. When I went to the bathroom everything was ok, but I did notice a little bit of red that could have been blood, but I could just have a hemorroid or something. Umm trying not to be too graphic here sorry. I'm just wondering... Does this sound like a common reaction to gluten that anyone's had after not eating it?

Was I just having anxiety or a strange reaction to the alcohol or something? I don't drink that much.

Do you think I should try going gluten free again for longer or am I totally on the wrong track and this is some other mystery bowel illness? How long does it usually take to notice a difference? How thorough do I have to be with this? I've seen some people on here posting that they had to get new kitchen utensils and stuff... is that a good standard for everyone or just if you're extremely sensitive to it??

Any sites you can link me to, good setups for tracking food, thoughts or whatever are greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Lynn, I'm new to this myself, so maybe I'm not the best person to answer, but I think you should take some time to really read up on celiac. Cruise around this forum and you will learn a lot.

From what I understand, and from what I am now experiencing after six days of being gluten free, you won't see a lot of results right away because your body needs time to heal. And any "cheating" you do (cupcakes or beer) will set you right back at square one. You need to be strict with yourself and stay completely gluten free.

I understand about not having insurance. Why don't you try going gluten free for three months? And during that three months, DON'T CHEAT! You will be eating healthier and will develop healthier habits so you will feel better. If it turns out not to be the gluten, you will still be ahead of the game.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.