Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Sugar Crash.. Near Panic Like Episode During Gluten Free?


asickdaddy

Recommended Posts

asickdaddy Explorer

I have twice done the gluten free diet.

Both times I had a moments where I felt like my blood sugar dramatically dropped and I felt horrible.

My symptoms

I got extremely shakey

my heartrate increased

I felt like fainting

I felt weak

I felt breathless

Both times felt like panic attacks, but are different. I have had a panic attack, these felt less mental and more physical.

The one time it happened it was so severe I stopped by at my doctor. I had it hit me and I ate an apple and a candy bar and drank some juice and still felt the feeling. They checked my blood sugar and it was in normal range 86 I believe.

Each time this has happened food has helped, but its not instant. Its like once it starts it does not fully resolve until a good hour or two after I eat. It gets better with food, but still takes time for my body to settle down.

My doctor said I was healthy and that I should get better more quickly and chalked it up to stress. I do not think so anymore. Each time I go gluten free it happens and not just in early stages, but on gluten I do not have it happen.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sreese68 Enthusiast

I posted to your other post. These symptoms describe my neurological reactions to gluten exactly except for the breathless part. The faintness and weakness were mild but would show up in waves. The worst shakiness came around 2 or 3 hours without eating, but it never completely went away. I always thought my slight hypoglycemia I've had for 20 years was normal for me. It went away gluten-free and came back FAR, FAR worse when eating gluten.

The physical panic part I've always interpreted as my body screaming "EAT NOW!" I would get VERY irritable and flustered and not able to think clearly until I could eat. I just learned to mask my symptoms by eating frequently throughout the day.

ETA: I just realized you said you get this when gluten-free. Maybe withdrawal? Maybe you react neurologically to a food you eat when eating gluten-free and don't eat when eating gluten?

Leli Newbie

I don't know how you'd check this, but I know that if you make serious changes in your diet your intestinal flora will possibly change in colony size and type. Many bacteria release toxins when they die, and if you excluded somthing from your diet and subsequently had a bacterial die-off (many at once instead of a constant but smaller number of bacteria dying), the toxins released could cause the symptoms you describe.

I have a friend who took her boys off wheat, and for the first week their behaviour was atrocious. After that they were fine - much improved compared to their wheaty behaviour.

This is a guess. Maybe a probiotic would make the picture clearer?

How long into the gluten-free diet have you gone, and had these episodes?

GlutenFreeManna Rising Star

I had it hit me and I ate an apple and a candy bar and drank some juice and still felt the feeling. They checked my blood sugar and it was in normal range 86 I believe.

What type of candy bar did you eat? Also how long had it been since you had eaten last when you ate the apple, candy bar and juice? I get those symptoms for two possible reasons--I waited too long to eat OR I ate gluten, soy or dairy.

ravenwoodglass Mentor

I have a friend who took her boys off wheat, and for the first week their behaviour was atrocious. After that they were fine - much improved compared to their wheaty behaviour.

This was most likely due to gluten withdrawl. Many of us have neuro effects and when we stop eating gluten we will go through a withdrawl period.

kwylee Apprentice

My gluten reactions are almost all neurological, all the symptoms you cite were present for me on a regular basis, albeit, not as severe as the withdrawal phase. About a week after going totally gluten free (although I was still careless about dairy and soy at that time), I had a horrible episode in the middle of the night. I awoke to an intense feeling as if I was going to jump out of my skin. I was panicked, dizzy, nauseous, heart was pounding and I shook for about five long minutes. My husband was 30 seconds away from calling the paramedics before it began to subside. I got through that, and for the next week I was pretty dizzy and shaky, much more so than ever before removing gluten from my diet. After that though, I also removed dairy and soy. I think ingesting those the night before may have touched off the episode, unsure.

But once I got over that hump, that initial withdrawal though, things were 800% better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.