Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain/swelling - Elimination Diet


PBJMD

Recommended Posts

PBJMD Newbie

Hi everyone,

I am 31 and have been experiencing worsening joint pain, swelling, and stiffness in both hands, knees, feet, and TMJs for about 2 years. I was diagnosed with celiac in November and have been gluten-free ever since. Since my symptoms have persisted, I gave up dairy in April with no improvement. I then gave up nightshades, corn, egg, caffeine, and chocolate in May and still have noticed no improvement. Desperate to feel better, I started an elimination diet on July 1. I'm now on Day 8 and my symptoms - if anything - have gotten a little worse. Does anyone else have experience with arthritis and/or elimination diets? I know it's common to feel worse before you feel better on the elimination diet, but when should I start to feel better? Also, the diet wants me to start adding back potentially reactive foods (starting with lemons and limes) around Day 10. Should I do that even if I feel no better? I would be so grateful if anyone can offer any help as this has truly been crippling my life and I am very desperate to feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you on any medications or supplements? If so have you checked with the maker to be sure they are gluten free? If not you should do so. Note that some supplements can have wheat and barley grass and still be labeled gluten free so do read all ingredients on them.

It may not be the case for you but for me eliminating soy helped a great deal with joint pain and swelling.

You mention you are on an elimination diet, what form are you on? With my allergist guided elimination he started me off with only five different foods, nothing other than water as a beverage and designed my starting point to ensure that I had adaquate calories and nutrition. My starting point included only foods I very rarely ate as he said I would be less likely to react to them.

Also if you joint pain is related to celiac it can take some time to ease. In my case it was at least 2 or 3 months before I had any noticeable relief but others might notice relief sooner or even later than that.

Do be sure to take the precautions you need to at home, new toaster, strainer, replacing scratched non-stick pans and wooden cutting boards and utensils. Don't bake with wheat flour for others as it will be airborn and can CC you that way. It would also be a good idea to make sure that all toiletries are gluten free.

Hawthorn Rookie

Have you looked into the anti inflammatory benefits of certain foods? I find oily fish very good for helping with joint aches and pains. If you google anti inflammatory diet there is a ton of information out there.

Good luck with the elimination diet :)

Beth C from MA Newbie

I had Rheumatoid Arthritis for two decades before my very recent Celiac diagnosis. From what I've researched and from other folks I know it seems that some people with arthritis and celiac do see some relief of their joint pain/swelling after going gluten-free. Others truly do have both conditions, which would not be unusual, since Celiac is an autoimmune disorder and so is arthritis. One person I know was diagnosed with Rheumatoid Arthritis and was fully symptomatic and taking several common R.A. medications. It took several months but after a while her R.A. symptoms subsided and she's now off all her medications. In other cases, though, the two conditions co-exist and the person truly does have both. Personally, I've only been gluten-free since 6/20/11 - much too early to tell but we shall see if there ends up being any connection for me or not.

Good luck in your efforts! Wishing you (and all of us) all the best on our journey to be as healthy as we can be.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.