Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Am I Doing?


jemms

Recommended Posts

jemms Apprentice

Lately, I have been binging on cheese even though I cant have dairy and pretzel rolls and other tasty gluten filled breads. I feel like I am out of control. I know this is harming my body but I cant stop. I was only diagnosed a few months ago and in the beginning I was really careful but now I think I am just so angry that I dont care anymore. What is wrong with me??? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenniferxgfx Contributor

Gluten an dairy triggers opiod responses in people-- you might be going through withdrawals. If you can resist the urges, the terrible craving may pass. Have gluten-free substitutes (whole foods are great but sometimes I really need a cookie!) think of it like detoxing from heroin, because it's a lot like that. :/

Takala Enthusiast

You are just out of whack, that's all. And glutened.

If it's not in the house you can't eat it. Stock up on what you can eat and get rid of the rest of it.

If you are not already, you will need to be taking a gluten free multivitamin, B complex, calcium w/ D, and magnesium supplements.

Try eating higher protein, lower carbohydrate and higher good fats. This means more things live olive oil, avocados, nuts, eggs, chocolate, coconut milk. You should get several cans of that coconut milk and start using it in your coffee and tea. You can also make great sauces and soups out of coconut milk. There is also Coconut Bliss frozen ice coconut cream, which is truly decadent. Never eat just plain old "white" carbohydrates without putting some fat and protein into the meal or snack. This means that you want to make home fries out of your potatoes more often. Fat is good for helping make you feel full, and it takes longer to burn off, it won't spike your blood sugar up and then crash it.

They make gluten free and dairy free cheese substitutes, but if you cannot do these without triggering more cravings, you may want to start subbing something like nuts or cooked beans with lots of olive oil. They also make gluten free, dairy free buttery spreads. I can make a killer rice pasta pesto with olive oil, garlic, basil, and chopped nuts which is cooked and tossed with rice pasta, no cheese necessary. Other people go and eat a lot of hummus of mashed chickpeas, garlic, and olive oil - you can make a gluten free flatbread on a stovetop pretty quickly out of high protein type gluten free nutmeals and seedmeals, and have that as a snack or meal. Other people develop a serious relationship with peanut butter. Avocado and mayo on anything is a worthy cheese substitute. For example, you can take a tortilla, put chile or refried beans on it, lay a fried egg on that, and top with avocado slices drizzled with oil and sprinkled with lime and salt for some kick.

3 to 4 heaping tablespoons of gluten free flour, a bit of vinegar, oil, baking soda, salt, and seasoning, with a little dollop of molasses for the iron, add some water, and you can have a bun in cup in the microwave or a pancake on the stove in a minute or two. I make a lot of these out of things like almonds, buckwheat, and amaranth and teff mixtures, because they are higher protein and don't spike your blood sugar, and they can be used as a base to be made sweeter or savory. You can make them taste like a doughnut when sprinkled w/ cinnamon or choc chips, or whole grain bread. Adding an egg makes them even higher protein. Avoid that rice styrofoam stuff. You also may want to do an alternative breakfast to just cereal and milk sub, or add some protein to it like a hard boiled egg or some bacon.

For the urge to chew things, select gluten free alternatives, such as nuts, fresh fruits, or vegetables. You can also keep your pantry well stashed up with rice cakes, so you have something that can be a base for things like the peanut butter or tuna with gluten free mayonnaise.

Hopefully this has given you some ideas on how to eat heartier so as to avoid bad gluten.

WhenDee Rookie

You're in the angry phase, that's what is wrong with you!

I was happy to be well when I found out that I thought I would never have an "angry" phase. Wrong! I got glutened at a restaurant and the frustration took over for a while. Eating bread or something straight-out would have made me too sick, but I took lots of chances and did gluten myself by mistake several times.

Being gluten free is

HARD!

FRUSTRATING!

ANNOYING!

It takes over everything! You can't just have a cracker on your way out when you're starving. If the store runs out of the ONE brand of whatever-it-is you can eat, you feel like snatching out of other carts and yelling, "you have a choice! I don't! Pick a different kind of potato chips!" Eating out is a minefield. The kids are constantly into MY stuff, hubby is not careful with the bread, I can't use the toaster... agh!

I will never, ever be able to return to Bernalillo, New Mexico and have the most fantastic green chili enchiladas ever conceived by man, my most favorite food ever ever ever ever. That is truly heartbreaking. It makes me want to cry, right now.

The good thing is... this will pass. If you persevere, this will go away, and besides the occasional moment, you'll get used to it and stop being so mad. You'll find new favorites and frequently manage to forget the old ones.

It's like a phase of grief. It seems stupid, but we have to put down a whole way of eating, a way of interacting socially, and pick another way that is hard and frustrating and annoying. Of course we grieve a little, even if it seems selfish and trite.

So grieve, and try not to hurt yourself too much with it. Tomorrow is always a new day.

loneferret Newbie

WhenDee... you just described what I'm feeling, minus that last part of things passing. lol

jemms Apprentice

thank you all for your thoughts and ideas...I am in tears over here because I know I am not alone in this.

@Takala-thank you for the wonderful ideas!!! I am printing that out.

@WhenDee thank you for reminding me that tomorrow is a new day and that it is ok to feel like this sometimes.

Peace to you both!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,185
    • Most Online (within 30 mins)
      7,748

    hollys
    Newest Member
    hollys
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
×
×
  • Create New...