Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Distance Backpacking--Any Celiacs Going Long Miles?


Rebecca Mezoff

Recommended Posts

Rebecca Mezoff Newbie

I was diagnosed with celiac disease in 2005. I love long-distance backpacking and completed the Colorado Trail in 2003. I'm heading out on the Colorado Trail again in a few weeks (500 miles) as a shake-down hike for a 2012 attempt on the Pacific Crest Trail (2,650 miles; April 2012). I'm comfortable with my gear, but always am looking for food options. I need LOTS of calories for as little weight as possible, so rice noodle soup is not going to cut it. I have seen people post things about quinoa (and have heard it can be dehydrated though haven't tried this yet). I've eaten Lara bars and like them, but would like to find something with even more calories per ounce.

Any food suggestions for me? This is a 5 month hike and will require a LOT of food. Most of it will have to be shipped to post offices along the way as I won't be able to find gluten-free options in small towns.

Also, I'm interested in whether anyone with celiac disease has hiked one of the long trails. I did read the blog of the "Breadless Horseman" who did the AT a few years ago--but his Mom put together all his food. I think literally dehydrated and constructed each meal. I don't have time for this. It would take me a month just to put food in little baggies! (Though I definitely am willing to do some food assembly--I do like some good tasting food).

I'm interested in whether there was any different physiological effects hiking the trail with celiac disease... I think if your gut is healthy (mine is finally), it shouldn't be that different than anyone else doing it, but don't know as I haven't done a long trail with celiac disease yet.

Thanks,

Rebecca


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yay for getting ready to do the PCT! (That's a lifetime goal for me. That and Rainier.)

When I backpack, I make and dehydrate much of my own food - it doesn't actually take as long as you'd think, but you would want to be doing it over the course of the winter.

You probably want to look into freeze dried options (especially for fruits/veggies) as they are both much lighter and tastier than the dried versions (though, also more expensive).

You may want to just try to keep some oil (like olive oil, that would work in a lot of different dishes) in your caches for very high energy density "food". Peanut butter is also a good choice, and you could always fill a re-useable tube with small amounts in each cache.

Even without a dehydrator, you may find it worthwhile to consider trying to dehydrate some gluten-free grains - they'll cook quickly (or even without cooking, just soak in water while you hike - I'm a big fan of 'freezer bag cooking' for my backpacking trips). Ditto with beans. (Dehydrated chili reconstitutes really well!) And also eggs (which also makes a good dense energy source, and a tasty breakfast when combined with potatoes).

  • 1 month later...
RollingAlong Explorer

My gluten-free/CF spouse is planning an AT thru-hike in 2012. I am not at all sure this is do-able at this point, but I am reading up on dehydrating.

Do you like pemmican? What do you think about making hardtack with gluten-free grains?

Do you have a feel for how many calories you need each day?

GlutenGladi8or Apprentice

Two quick suggestions and I'll add more later when I have time. Costco carries a item called "Nonpareil Hash Browns". They are dehydrated and are sold in mini milk cartons. You add water and they reconstitute quickly and then you put the into a skillet. Secondly, Amazon sells several dried black bean packages. Again, just add water and they reconstitute very quickly. Both are all natural and pack some good carbo energy. Give both of these a try.

PS - Coloradan here.

  • 2 months later...
amcouch Newbie

I was just diagnosed with celiacs last week. I climbed Mt Rainier this summer and am already scheduled to do I again next summer. It was a total white out on the summit so I need to go back to see the view from the top! :)

I went with IMG - a FANTASTIC guiding service! They provide your breakfast and dinner. Looking back it was very carb and gluten heavy. They will however do their best to accommodate any dietary restrictions.

  • 1 month later...
GlutardNation Newbie

I have done 2 - 4 week trips to the BWCA and Quetico, and although I went prior to my Celiac's diagnosis, one thing I felt helped with quick energy was something called "Matt food." It's just peanut butter, powdered milk, honey, oats (Bob's red mill has gluten-free rolled oats), and chocolate chips. You just add the fixings to your taste. It's great to have a spoonful when you need a boost, and is rich in calories, protein and carbs.

Hope you have a great hike!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.