Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Distance Backpacking--Any Celiacs Going Long Miles?


Rebecca Mezoff

Recommended Posts

Rebecca Mezoff Newbie

I was diagnosed with celiac disease in 2005. I love long-distance backpacking and completed the Colorado Trail in 2003. I'm heading out on the Colorado Trail again in a few weeks (500 miles) as a shake-down hike for a 2012 attempt on the Pacific Crest Trail (2,650 miles; April 2012). I'm comfortable with my gear, but always am looking for food options. I need LOTS of calories for as little weight as possible, so rice noodle soup is not going to cut it. I have seen people post things about quinoa (and have heard it can be dehydrated though haven't tried this yet). I've eaten Lara bars and like them, but would like to find something with even more calories per ounce.

Any food suggestions for me? This is a 5 month hike and will require a LOT of food. Most of it will have to be shipped to post offices along the way as I won't be able to find gluten-free options in small towns.

Also, I'm interested in whether anyone with celiac disease has hiked one of the long trails. I did read the blog of the "Breadless Horseman" who did the AT a few years ago--but his Mom put together all his food. I think literally dehydrated and constructed each meal. I don't have time for this. It would take me a month just to put food in little baggies! (Though I definitely am willing to do some food assembly--I do like some good tasting food).

I'm interested in whether there was any different physiological effects hiking the trail with celiac disease... I think if your gut is healthy (mine is finally), it shouldn't be that different than anyone else doing it, but don't know as I haven't done a long trail with celiac disease yet.

Thanks,

Rebecca


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yay for getting ready to do the PCT! (That's a lifetime goal for me. That and Rainier.)

When I backpack, I make and dehydrate much of my own food - it doesn't actually take as long as you'd think, but you would want to be doing it over the course of the winter.

You probably want to look into freeze dried options (especially for fruits/veggies) as they are both much lighter and tastier than the dried versions (though, also more expensive).

You may want to just try to keep some oil (like olive oil, that would work in a lot of different dishes) in your caches for very high energy density "food". Peanut butter is also a good choice, and you could always fill a re-useable tube with small amounts in each cache.

Even without a dehydrator, you may find it worthwhile to consider trying to dehydrate some gluten-free grains - they'll cook quickly (or even without cooking, just soak in water while you hike - I'm a big fan of 'freezer bag cooking' for my backpacking trips). Ditto with beans. (Dehydrated chili reconstitutes really well!) And also eggs (which also makes a good dense energy source, and a tasty breakfast when combined with potatoes).

  • 1 month later...
RollingAlong Explorer

My gluten-free/CF spouse is planning an AT thru-hike in 2012. I am not at all sure this is do-able at this point, but I am reading up on dehydrating.

Do you like pemmican? What do you think about making hardtack with gluten-free grains?

Do you have a feel for how many calories you need each day?

GlutenGladi8or Apprentice

Two quick suggestions and I'll add more later when I have time. Costco carries a item called "Nonpareil Hash Browns". They are dehydrated and are sold in mini milk cartons. You add water and they reconstitute quickly and then you put the into a skillet. Secondly, Amazon sells several dried black bean packages. Again, just add water and they reconstitute very quickly. Both are all natural and pack some good carbo energy. Give both of these a try.

PS - Coloradan here.

  • 2 months later...
amcouch Newbie

I was just diagnosed with celiacs last week. I climbed Mt Rainier this summer and am already scheduled to do I again next summer. It was a total white out on the summit so I need to go back to see the view from the top! :)

I went with IMG - a FANTASTIC guiding service! They provide your breakfast and dinner. Looking back it was very carb and gluten heavy. They will however do their best to accommodate any dietary restrictions.

  • 1 month later...
GlutardNation Newbie

I have done 2 - 4 week trips to the BWCA and Quetico, and although I went prior to my Celiac's diagnosis, one thing I felt helped with quick energy was something called "Matt food." It's just peanut butter, powdered milk, honey, oats (Bob's red mill has gluten-free rolled oats), and chocolate chips. You just add the fixings to your taste. It's great to have a spoonful when you need a boost, and is rich in calories, protein and carbs.

Hope you have a great hike!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748

    TDeb
    Newest Member
    TDeb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.