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I'm A New Celiac. Awesome!

Day

By Day
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Day Newbie
Day
Posted

Dear fellow rice-lovers.

I just found out I had celiac yesterday, great great news. Anyways, it is what it is and hopefully I get to learn about what it all means on here. Good to meet some of you, forgive me if I reminisce on these forums about some of my old favorite foods for a while... kind of like pizza and burgers and chow mein. Anyways, sorry for making this post so pessimistic, I'm not usually this out of it. But I do hope to meet you all and learn some smart ways to enjoy food again.

~Day.

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sa1937 Community Regular
sa1937
Posted

Dear fellow rice-lovers.

I just found out I had celiac yesterday, great great news. Anyways, it is what it is and hopefully I get to learn about what it all means on here. Good to meet some of you, forgive me if I reminisce on these forums about some of my old favorite foods for a while... kind of like pizza and burgers and chow mein. Anyways, sorry for making this post so pessimistic, I'm not usually this out of it. But I do hope to meet you all and learn some smart ways to enjoy food again.

~Day.

Welcome, Day! Just keep reading the forum and you'll learn that we eat rather well. There's no reason you can't have pizza, burgers and chow mein...they just need to be gluten-free, which isn't as difficult as it sounds. Hopefully you cook as it'll make it a lot easier.

That said, your first trips to the grocery store might take a lot longer than previously and if you stick with a whole foods diet, you won't have as many labels to read. I spend a lot of time shopping the outer perimeter of the store...think fresh fruits, veggies and meats, eggs, etc. You get the picture.

ETA: And of course, rice! :D

Jestgar Rising Star
Jestgar
Posted

oh yeah, your eating's gonna totally improve. Life gets better, starting today.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

At first I went into overwhelm..especially at the Grocery store. I was thinking about what I couldn't have instead of fusing on what I COULD have. Soo..please accept my advice to try to keep a positive attitude. It gets better..I promise! Without Celiac I wouldn't have tried purple potatoes..they're fun! AND..Black apricots, Arugala, various plums, etc.

I'm eating a much healthier diet now and it's fun to go through the outer exterior of the store looking for new things to try. :D

As you start to heal..I think you'll find your mood improves too? The gluten seems to cause a sort of depression that will go away!

T.H. Community Regular
T.H.
Posted

Feels crummy at first, but seriously? If you're like a lot of us, you will be freaking STUNNED at what turns out to be gluten related.

Me? My joints and back and neck stopped hurting, my carpal tunnel went away, my weight dropped like a stone (good thing for me), headaches went away, dizziness went away. And the mental stuff is just wild. Memory improved, concentration improved. Depression and frustration and anxiety problems went away so even on the most severe diet of my life I felt BETTER than I ever had, emotionally speaking.

I like more exotic foods, so I looked to cultures that normally use little to no gluten (and still taste good). Ethiopian food is one, with their traditional Injera bread that has teff flour, but no wheat (if it's traditional. modern versions use wheat). Lots of asian food made with gluten-free soy sauce, which is still very authentic as gluten-free soy sauce is actually what soy sauce WAS when it was first invented. Thai foods works well (Thai Kitchen's stuff is often gluten-free: their pad thai, peanut sauce, that sort of thing)

Some indian and greek dishes are very nice, too (like falafel and hummus). I'm looking at recipes from Jamaica, now. :-)

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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