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Newbie Needs Help


Susan3

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Susan3 Rookie

Hi,

This is my fifth day gluten-free. Starting to feel better. I need help with reading ingredient lables. Besides the obvious-wheat, barley, rye, oats. What other ingredients must I be looking for that I must avoid?

I've been reading around here and have gotten a lot of valuable info.

Thanks!

Susan


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lbsteenwyk Explorer

Have you looked at the lists of safe and forbidden foods/ingredients on this website?

https://www.celiac.com/st_main.html?p_catid...-36105028321.14

The main ingredients I always investigate further are:

Modified Food Starch

Caramel Color

Natural Flavor

Artificial Flavor

Foods with these ingredients are often gluten free, but you need to verify that they are gluten-free with the manufacturer.

Jnkmnky Collaborator

Open Original Shared Link

You only need to call companies not on Kaiti's list of safe companies. Here's her list in this group of posts.

tarnalberry Community Regular

The list Laurie put up is one of the most helpful ones I've come across. I'd encourage you to keep a copy with you for a while until you've got the important ones memorized.

KaitiUSA Enthusiast

You should print out the list of safe and forbidden ingredients. That will definitely help you out. The brands mentioned in a link above are great for us too because they will not hide any gluten under any otherwise questionable ingredients.

amybeth Enthusiast
Have you looked at the lists of safe and forbidden foods/ingredients on this website? 

https://www.celiac.com/st_main.html?p_catid...-36105028321.14

The main ingredients I always investigate further are:

Modified Food Starch

Caramel Color

Natural Flavor

Artificial Flavor

Foods with these ingredients are often gluten free, but you need to verify that they are gluten-free with the manufacturer.

<{POST_SNAPBACK}>

I'm "new" too......Is it true that "Natural Flavors" are only a concern in meat products or products potentially containing meat?

KaitiUSA Enthusiast

Natural Flavors all need to be checked on because it can contain gluten.


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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