Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bedwetting After Being Glutened?


Guest BERNESES

Recommended Posts

Guest BERNESES

Thank God I can write about this somewhere- at least it's comparable to all the poop problems we have :P Last night, after being severely glutened this weekend (probably the sickest I have been in a LONG time) I wet the bed (I'm pretty sure!). I was really asleep (I sleep very hard while recovering from a glutening) and dreamt I was going to the bathroom and I woke up and i was. It was really strange. It's the first time it's ever happened.

I did a little Google search about adult bedwetting and it doesn't seem like too much of a concern (I experience a tiny bit of day incontinence too- laughing, sneezing, coughing etc.) unless it happens again. My assumption is that my body has been under so much stress from the glutening that I just didn't wake up. Has anyone else had this happen? Thanks, B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

I have had that happen before...... I think it has something to do with how our bodies get so exhausted (extreme fatigue) from gluten that our inner mechanism that wakes us through the night if we need to "go", just doesn't work.....

I wouldn't worry about it too much unless it became a regular occurence.....

Karen

Guest BERNESES

Thanks Karen- that was sort of what I thought. That makes me feel better. B

cdford Contributor

My incontinence problems are stable as long as I am gluten-free. If glutened even a little, bring on the Poise pads. I also wake up a lot at night to go after an incident. My teenage daughter wets the bed if she is glutened, but is fine if gluten-free. It is an odd side effect, huh?

Guest BERNESES

Yeah- it kind of freaked me out. But then I thought about how exhausted I was after this last glutening and it kind of made sense. Thanks everyone. You've made me feel better! B

  • 7 years later...
wheatweary Newbie

Oh my god, it's the gluten! I'm glad people are posting about this, it's nice to have confirmation from someone else. I've had rare instances of adult enuresis over the past several years or so with no explanation. Then several months ago started a pretty much (not perfect) gluten free dairy free diet, which made me feel better in many ways. Now, I've decided I want blood tests, just to see if it's celiac vs intolerance, so I've been wheating it up for a couple of weeks, feeling awful of course, and had another instance of bedwetting. I doubt it's a coincidence.

The idea that we are sleeping differently and not waking up is interesting. I was dreaming that I was going to the bathroom this time. One time this happened, I was also having a lot of trouble with idiopathic hypersomnolence (that was the diagnosis, though it's really just a symptom--I had sleep studies and everything). I wonder if that's part of it. Or some irritation/inflammation/damage to the nerves that control that function. Or fatigue/strain on the pelvic floor muscles resulting from the gastrointestinal effects of the gluten. I've also had symptoms consistent with interstitial cystitis in the past.

Anyway, I'm posting, too, though it's a little embarrassing, because it helps me when I find someone with the same experience.

NGG Newbie

I'm glad to hear this is related to celiac disease, because my 10-year-old daughter has had this problem occasionally (like a few times a year -not often), and you can imagine her worry that it would happen during sleepovers or slumber parties. I'll have to tell her that it hopefully won't be a problem again. She'll be really relieved to hear that.

It's funny how we got tested and diagnosed and it turned out so many problems we were having that we never would have connected with celiac disease were caused by it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

I'm going to go out on a limb and guess that aside from the teens mentioned, the adults who've had this problem have also given birth at least once? It's TOTALLY normal for women to deal with cough/laugh/sneeze incontinence after giving birth. I would imagine it would have something to do with exacerbating the gluten incontinence. Just remind yourself, it's MUCH better than crapping the bed.... not that I'm speaking from personal experience.... :ph34r:

Persei V. Enthusiast

Now that this was mentioned... I had incontinence problems until very recently. I seriously couldn't laugh without peeing myself. I was extremely self counscious and rarely laughed in public because of this.

It's gone now and I didn't even notice it. :blink:

So yeah, I'm with you guys.

Even though I didn't give birth.

Gemme Rookie

Now that this was mentioned... I had incontinence problems until very recently. I seriously couldn't laugh without peeing myself. I was extremely self counscious and rarely laughed in public because of this.

It's gone now and I didn't even notice it. :blink:

So yeah, I'm with you guys.

Even though I didn't give birth.

Yes ! it happened few times with me, in my case it was low B12 level, once that improved , i never had that feeling.tongue.gif

Thank you

Mattie-Jack Newbie

My kids were bed wetters - daily. I have one that is 9. Every day. Within a week of cutting out gluten it stopped. After researching, it turns out that many people that are diagnosed with overactive bladder are actually having side effects from gluten. Once the gluten is removed from the diet, the overactive bladder stops. It's just one of those things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,432
    • Most Online (within 30 mins)
      7,748

    Betty Alex
    Newest Member
    Betty Alex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.