Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Back From The Doc

mario

By mario
in Coping with Celiac Disease

Recommended Posts

mario Explorer
mario
Posted

well my doc is not to happy cuz my system is not absorbing..He put stricktly on rice, bananas, chicken, apple sauce,..for atleast one week..I'm very discouraged, will I ever feel good again...?? :(:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest shar4
Guest shar4
Posted

Mario,

Sorry to hear that you are not doing as well as you had hoped. Maybe this is what your system needs for a while, is to pare things to a minimum and then start adding back.

I hope you get to feeling better.

Guest TESTinME
Guest TESTinME
Posted

Try getting some acidopholous to balance out the good bacteria in your colon and digestive enzymes to take with your meal to help absorb (any health food store will carry them). The amino acid glutamine would help to heal your gut as well.

mario Explorer
mario
Posted
  • Author

but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

Guest gillian502
Guest gillian502
Posted

I wish I had a nickel for every time I've said, "Why didn't my doctor suggest this or that...?" Believe me, you have to stay on these doctors left and right, they're just too busy with too many patients and simply don't know enough about celiac disease to begin with. Also, doctors generally won't suggest something like acidopholous, that's something you just should try on your own, and see if it works for you. I've heard it may cause more diarrhea, though, but that may be different for each person. I'm so sorry to hear you aren't absorbing properly, I'm not well either, and I know how that feels. Have you had the major tests such as floroscopy (a live x-ray that takes a look at the small bowel after drinking barium) to rule out a few more serious things? Or a CT scan? This is almost certainly diet-related, but it would give you peace of mind to rule out the big stuff. And both a floroscopy and a CT scan are non-invasive, so it's just a good idea to have those done if you're still having trouble.

DLayman Apprentice
DLayman
Posted

Our doctor actually suggested acidopholus.. ok I can't spell it.. but anyway.. you should be able to get it in capsules at a good health food store. It should be stored in the fridge. I would suggest yogurt but most comercial yogurt even though it has acidopholus also has lactose which would probably be a problem. What are you drinking? I suggest apple cider and 100% grape juice both cut in half with water.

mario Explorer
mario
Posted
  • Author

I'm drinking apple juice from rougemont its 100% pure, I also have the motts. Uncle bens sure is good rice, my friend linda has it very often, she replaces her pasta with the rice, she mixes everything thats nutritional in it...

I'm feeling better with the rice..I'm starting to have normal stools again..pheww

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest TESTinME
Guest TESTinME
Posted
but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

It's sad but doctors don't know a lot about natural therapies and how they can assist in digestion and healing.

I've found I need to educate myself and not rely on doctor's. I figured out I had celiac on my own after my doc said I had IBS.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. cristiana
      - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure...
    3. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead...
    5. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

      How bad can this get ?? Does it go away?? How long ? Thank you
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748
    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Rectal pain

      By cristiana · Posted

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Related issues

      By Mari · Posted

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      Brain fog

      By Colleen H · Posted

      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.