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Just Got Back From The Doc

mario

By mario
in Coping with Celiac Disease

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mario Explorer
mario
Posted

well my doc is not to happy cuz my system is not absorbing..He put stricktly on rice, bananas, chicken, apple sauce,..for atleast one week..I'm very discouraged, will I ever feel good again...?? :(:(

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Guest shar4
Guest shar4
Posted

Mario,

Sorry to hear that you are not doing as well as you had hoped. Maybe this is what your system needs for a while, is to pare things to a minimum and then start adding back.

I hope you get to feeling better.

Guest TESTinME
Guest TESTinME
Posted

Try getting some acidopholous to balance out the good bacteria in your colon and digestive enzymes to take with your meal to help absorb (any health food store will carry them). The amino acid glutamine would help to heal your gut as well.

mario Explorer
mario
Posted
  • Author

but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

Guest gillian502
Guest gillian502
Posted

I wish I had a nickel for every time I've said, "Why didn't my doctor suggest this or that...?" Believe me, you have to stay on these doctors left and right, they're just too busy with too many patients and simply don't know enough about celiac disease to begin with. Also, doctors generally won't suggest something like acidopholous, that's something you just should try on your own, and see if it works for you. I've heard it may cause more diarrhea, though, but that may be different for each person. I'm so sorry to hear you aren't absorbing properly, I'm not well either, and I know how that feels. Have you had the major tests such as floroscopy (a live x-ray that takes a look at the small bowel after drinking barium) to rule out a few more serious things? Or a CT scan? This is almost certainly diet-related, but it would give you peace of mind to rule out the big stuff. And both a floroscopy and a CT scan are non-invasive, so it's just a good idea to have those done if you're still having trouble.

DLayman Apprentice
DLayman
Posted

Our doctor actually suggested acidopholus.. ok I can't spell it.. but anyway.. you should be able to get it in capsules at a good health food store. It should be stored in the fridge. I would suggest yogurt but most comercial yogurt even though it has acidopholus also has lactose which would probably be a problem. What are you drinking? I suggest apple cider and 100% grape juice both cut in half with water.

mario Explorer
mario
Posted
  • Author

I'm drinking apple juice from rougemont its 100% pure, I also have the motts. Uncle bens sure is good rice, my friend linda has it very often, she replaces her pasta with the rice, she mixes everything thats nutritional in it...

I'm feeling better with the rice..I'm starting to have normal stools again..pheww

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Guest TESTinME
Guest TESTinME
Posted
but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

It's sad but doctors don't know a lot about natural therapies and how they can assist in digestion and healing.

I've found I need to educate myself and not rely on doctor's. I figured out I had celiac on my own after my doc said I had IBS.

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    • cristiana
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      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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