Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Back From The Doc


mario

Recommended Posts

mario Explorer

well my doc is not to happy cuz my system is not absorbing..He put stricktly on rice, bananas, chicken, apple sauce,..for atleast one week..I'm very discouraged, will I ever feel good again...?? :(:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest shar4

Mario,

Sorry to hear that you are not doing as well as you had hoped. Maybe this is what your system needs for a while, is to pare things to a minimum and then start adding back.

I hope you get to feeling better.

Guest TESTinME

Try getting some acidopholous to balance out the good bacteria in your colon and digestive enzymes to take with your meal to help absorb (any health food store will carry them). The amino acid glutamine would help to heal your gut as well.

mario Explorer

but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

Guest gillian502

I wish I had a nickel for every time I've said, "Why didn't my doctor suggest this or that...?" Believe me, you have to stay on these doctors left and right, they're just too busy with too many patients and simply don't know enough about celiac disease to begin with. Also, doctors generally won't suggest something like acidopholous, that's something you just should try on your own, and see if it works for you. I've heard it may cause more diarrhea, though, but that may be different for each person. I'm so sorry to hear you aren't absorbing properly, I'm not well either, and I know how that feels. Have you had the major tests such as floroscopy (a live x-ray that takes a look at the small bowel after drinking barium) to rule out a few more serious things? Or a CT scan? This is almost certainly diet-related, but it would give you peace of mind to rule out the big stuff. And both a floroscopy and a CT scan are non-invasive, so it's just a good idea to have those done if you're still having trouble.

DLayman Apprentice

Our doctor actually suggested acidopholus.. ok I can't spell it.. but anyway.. you should be able to get it in capsules at a good health food store. It should be stored in the fridge. I would suggest yogurt but most comercial yogurt even though it has acidopholus also has lactose which would probably be a problem. What are you drinking? I suggest apple cider and 100% grape juice both cut in half with water.

mario Explorer

I'm drinking apple juice from rougemont its 100% pure, I also have the motts. Uncle bens sure is good rice, my friend linda has it very often, she replaces her pasta with the rice, she mixes everything thats nutritional in it...

I'm feeling better with the rice..I'm starting to have normal stools again..pheww


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest TESTinME
but, why didn't my doc prescribe me something like that...I'm going back to see him next week..

It's sad but doctors don't know a lot about natural therapies and how they can assist in digestion and healing.

I've found I need to educate myself and not rely on doctor's. I figured out I had celiac on my own after my doc said I had IBS.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,670
    • Most Online (within 30 mins)
      7,748

    PamelaV
    Newest Member
    PamelaV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.