Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Please


jodee

Recommended Posts

jodee Newbie

Hello everyone first time on here need some feed back very scared and confused.I started getting sick about a year and half ago.I started out with diarrhea pain in left side of belly.I was also bloating really bad and the only way I could get rid of the gas was using a suppository every day.I finally got into see a gastro doc he did a endoscopy and said I was red and irritated in my stomach.He made me an appt for a colonoscopy He gave me the stuff to drink to clean me out and I got half of it down and started throwing up.He wouldn't do the colonoscopy because He was worried I wouldn't be cleaned out enough.I ended up going to the hospital and they did a cat scan with dye and couldn't find any blockages.In the mean time I finally got the pill cam done and that was two weeks ago and still haven't got results back yet.In the mean time I did cut wheat and milk out of my diet and has helped.But thees a huge problem I haven't been able to go to the bathroom by my self for two months. I have had to give myself an enema every 4 days.I still have the pill cam in me.My doctor finally did ex ray and its on lower left side of abdomen.Since I have been having to give myself enemas im really inflamed down there.He prescribed some cream to take swelling away and told me to do sits baths.I still cant get it out tried another enema and now nothing is coming out but water.My doctor wont listen to me.Is it possible I ate wheat and milk for so long and didn't know i was allergic and now my intestines are so inflamed I cant go to bathroom and if that's the case What can I do to heal.By the way I hate my doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dwillis Newbie

Get a second opinion..

bbdailey Explorer

It just takes time. I completely understand your frustration. I was unable to use the bathroom for 5 months and it wasnt until about 2 weeks gluten free that I was able to slowly but surely use the bathroom again. I have been gluten free for 4 months now and soy and dairy free for 1 month. I still struggle with constipation but I got so used to not going that I dont really seem to mind the 2 or 3 day periods I cant go. Just stay patient and stay positive! I know it is a difficult road but keep at it and you will figure it out!

kennedymoore Rookie

Hello everyone first time on here need some feed back very scared and confused.I started getting sick about a year and half ago.I started out with diarrhea pain in left side of belly.I was also bloating really bad and the only way I could get rid of the gas was using a suppository every day.I finally got into see a gastro doc he did a endoscopy and said I was red and irritated in my stomach.He made me an appt for a colonoscopy He gave me the stuff to drink to clean me out and I got half of it down and started throwing up.He wouldn't do the colonoscopy because He was worried I wouldn't be cleaned out enough.I ended up going to the hospital and they did a cat scan with dye and couldn't find any blockages.In the mean time I finally got the pill cam done and that was two weeks ago and still haven't got results back yet.In the mean time I did cut wheat and milk out of my diet and has helped.But thees a huge problem I haven't been able to go to the bathroom by my self for two months. I have had to give myself an enema every 4 days.I still have the pill cam in me.My doctor finally did ex ray and its on lower left side of abdomen.Since I have been having to give myself enemas im really inflamed down there.He prescribed some cream to take swelling away and told me to do sits baths.I still cant get it out tried another enema and now nothing is coming out but water.My doctor wont listen to me.Is it possible I ate wheat and milk for so long and didn't know i was allergic and now my intestines are so inflamed I cant go to bathroom and if that's the case What can I do to heal.By the way I hate my doctor.

So sorry to hear of your difficulty. Take a deep breath... you are going to get through this. I would suggest that you try doing a salt water flush. Open Original Shared Link Here is the link at the website Healthbeyoundhype.com. The salt cleanses the entire digestive system, something an enema won't do. Keep doing it until you get some relief.

Aloe vera juice which is gluten free helps with constipation as does Magnesium Glycinate. Good luck to you.

pricklypear1971 Community Regular

And if you are able to eat, try a digestive enzyme with each meal. I use enzymedica digest gold. It helps digest food in the stomach so your tract has an easier time. If I take too many per day (3+) I actually get diarrhea.

You may also add a probiotic.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.