Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ct Scan Contrast


fattycat

Recommended Posts

fattycat Rookie

I had to spend a couple of days in the hospital. I brought in my own food but seem to have gotten badly glutenated somehow. I havent been this bad since diagnosis! I had to have a CT scan with injected contrast. I asked the nurse what the ingredients are but she couldnt find out. I know gluten can sometimes be in the oral kind but what about the injected kind?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoshB Apprentice

I had to spend a couple of days in the hospital. I brought in my own food but seem to have gotten badly glutenated somehow. I havent been this bad since diagnosis! I had to have a CT scan with injected contrast. I asked the nurse what the ingredients are but she couldnt find out. I know gluten can sometimes be in the oral kind but what about the injected kind?

I don't think so. Gluten containing ingredients can supposedly be found (though I've never actually seen it) as binders in pills. The very last thing they want in any injected medication is "binding". Actually, from what I've read, wheat starch is so heavily processed for medical purposes that it shouldn't matter even if it is used in pill; it's supposed to be pure starch, no gluten.

shadowicewolf Proficient

"should be" is a key word, however, it can still cause a reaction.

fattycat Rookie

I'm really at a loss then. I keep racking my brain but I can't think of what else it may have been. There was the CT scan, some other scans without any injection, blood tests, blood sugar tests, iv saline solution...All should be ok. What am I missing? Maybe the bedding?

Roda Rising Star

I had to spend a couple of days in the hospital. I brought in my own food but seem to have gotten badly glutenated somehow. I havent been this bad since diagnosis! I had to have a CT scan with injected contrast. I asked the nurse what the ingredients are but she couldnt find out. I know gluten can sometimes be in the oral kind but what about the injected kind?

Did they have you drink anything for the scan too? Some of the oral ct scan contrast can have gluten. As for the IV contrast there is no gluten but it is iodine based. Your nurse probably didn't know the ingredients but the CT technologist should have been able to give you all the information on the IV contrast. We have to keep the package insert in our radiology dept. and also in pharmacy. What symptoms were you having after? It is possible you could have reacted to the IV contrast but not because of gluten.

fattycat Rookie

Thank you Roda. They didnt have me drink anything. They hooked me up to an IV and had me fast for quite a few hours. Then they took me to have my heart checked, then a chest x-ray and then to the CT. They injected the liquid into my arm and then felt all warm for a moment. All normal. The only other things they did that day were took blood, blood pressure tests and later in the evening blood glucose test from a pin prick test.

I was feeling ok but the next morning I was feeling like crap. Absolutely exhausted, couldnt even keep my eyes open. Felt like I was going to vomit, had loose bowels, rash on my face etc. Slept most of the day because that's all I could do. I could only keep my eyes open for about 15 min at a time. By evening though I was feeling ok. The ddoctor thought it might have been a reaction to the contrast.

That night they gave me two steroid pills before bed. The next morning though I felt like crap again. Loose bowels, feeling like I was going to vomit, brain fog etc. The doctor said that because it was happening again it wasnt a reaction to the contrast and that if it countinued I should come back later in the week. As I was getting into my steet clothes to leave the hospital though I noticed that I had 3 patches of hives. All the symptoms were like I had been exposed to gluten but we had brought in our own food and drinks.

Roda Rising Star

Thank you Roda. They didnt have me drink anything. They hooked me up to an IV and had me fast for quite a few hours. Then they took me to have my heart checked, then a chest x-ray and then to the CT. They injected the liquid into my arm and then felt all warm for a moment. All normal. The only other things they did that day were took blood, blood pressure tests and later in the evening blood glucose test from a pin prick test.

I was feeling ok but the next morning I was feeling like crap. Absolutely exhausted, couldnt even keep my eyes open. Felt like I was going to vomit, had loose bowels, rash on my face etc. Slept most of the day because that's all I could do. I could only keep my eyes open for about 15 min at a time. By evening though I was feeling ok. The ddoctor thought it might have been a reaction to the contrast.

That night they gave me two steroid pills before bed. The next morning though I felt like crap again. Loose bowels, feeling like I was going to vomit, brain fog etc. The doctor said that because it was happening again it wasnt a reaction to the contrast and that if it countinued I should come back later in the week. As I was getting into my steet clothes to leave the hospital though I noticed that I had 3 patches of hives. All the symptoms were like I had been exposed to gluten but we had brought in our own food and drinks.

Hard to tell if it was the IV contrast, but not impossible. What has my intrest is the rash you had. As for the hives the following day, could those have been from the steriod pills they gave you? It still is a possibility that your reactions were from the IV contrast though. If you are uncertain, mention it if you ever have another CT scan where they may need to use it. If you want to be cautious then your physician can always order you premedication beforehand to lessen the chance of a reaction.

You also mentioned that you had a heart test. Did you have by chance a nuclear medicine stress test? They inject you with radioactive isotopes and other things for that too, but I don't know a whole lot about those.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fattycat Rookie

Hard to tell if it was the IV contrast, but not impossible. What has my intrest is the rash you had. As for the hives the following day, could those have been from the steriod pills they gave you? It still is a possibility that your reactions were from the IV contrast though. If you are uncertain, mention it if you ever have another CT scan where they may need to use it. If you want to be cautious then your physician can always order you premedication beforehand to lessen the chance of a reaction.

You also mentioned that you had a heart test. Did you have by chance a nuclear medicine stress test? They inject you with radioactive isotopes and other things for that too, but I don't know a whole lot about those.

Unfortunately we didnt notice the hives until the doctor on the floor was gone from doing his rounds and were only able to discuss it with the nurse. She wasnt sure what was going on. They've since gone down. The just did a quick heart test before the CT for some reason. I dont think they did a nuclear medicine stress test. I've been slowly gaining weight for 3 years and they dont know why. They were testing for Cushings as well as other things. The rash was only on my chin, cheeks and mouth. (like what happens when I have a gluten problem)

Roda Rising Star

This is just a streatch but do you get DH? From what I read on here iodine can flare that up. Just a thought since the contrast is iodine based.

ravenwoodglass Mentor

This is just a streatch but do you get DH? From what I read on here iodine can flare that up. Just a thought since the contrast is iodine based.

Great minds think alike. I have DH and my doctor wouldn't let them use the injected contrast when I had a scan and ordered gluten free liquid to drink. I had been severely glutened when I had a previous scan done with the regular barium drink.

fattycat Rookie

Great minds think alike. I have DH and my doctor wouldn't let them use the injected contrast when I had a scan and ordered gluten free liquid to drink. I had been severely glutened when I had a previous scan done with the regular barium drink.

I'm usually ok these days but had had food poisioning a couple of weeks ago that put some stress on my system. It was the tiredness, rash, hives etc that made me think gulten before. But maybe the sheets on the bed or someone else had come into contact. I guess there is no way to know but if I ever have a CT scan again I know to let them know that I felt like crap after!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,699
    • Most Online (within 30 mins)
      7,748

    RelievedP
    Newest Member
    RelievedP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
    • knitty kitty
      Have you tried a genetic test to look for Celiac genes?  No gluten challenge required.  
    • knitty kitty
      Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet?  A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies.  Are you Celiac as well?   Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine Vitamin B 1, can help the body calm down it's release of histamine.  Benfotiamine improves Sailors' asthma.  
    • knitty kitty
      Don't skimp on the gluten daily while undergoing the gluten challenge!  
    • RDLiberty
      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.