Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Was My First Time Today With Horrible Cramping And Diarrhea. I Nearly Wrecked The Car.


asickdaddy

Recommended Posts

asickdaddy Explorer

My problems have been anxiety, abdominal pain, and constipation. I never had the really urgent need for a bathroom, quite the opposite.

I have been back to a gluten and dairy free diet now for a little over a week.

Today at a family picnic I just felt so much tension and anxiety. I did not consume any gluten and cross contamination if it occurred had to have been minor. I am not overly sensitive as when I had to return to eating gluten my symptoms took some time to show back up after ingesting quite a bit of gluten.

Well I had to just leave I felt panic and I felt like I had to go to the bathroom so I left.

Driving home I felt the anxiety leave. But I felt increasingly like I had to go, and quick. I never in my life feel like this, usually quite the opposite.

Anyway, I could barely even continue driving. I was alone in the car and the cramps hit me and I could not even sit still. I was minutes from home and started to panic as I could not take it for even another second.

Fortunately I made it, but it was close. I have to say this was my first experience like this extreme. Yes I had diarrhea although not extremely watery and did feel relief and I did notice the strattorhea that people talk about.

I must say I hope this is a sign of healing. . Phew. . For those that had these symptoms previously I feel for you, I thought chronic constipation was bad.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Welcome to the forum, daddy.

Sorry, there is no "minor" cc or gluten ingestion. Either/or will kick you hard, just like you described. Potlucks and picnics are fun when you bring your own food. You really cannot trust what other people bring, even beloved family members with the very best best intentions.

Hope you feel better soon!

Roda Rising Star

I was constipated before gluten free. For about the first year if I got glutened I would become constipated. Then my symptoms changed. I got chronic D and steatorrhea. I would not want to leave the house for fear of an accident. I later (8 months later :( ) realized I was reacting to gluten free oat contmination in gluten free products. Now if I get glutened I get the D and steatorrhea and it takes a good 1-2 weeks of eating bland and taking creon to get back to normal. I understand what you mean about thinking the constipation was bad. I think my new reactions are worse! :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.