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Anyone In Rolla, Mo Area?


nettiebeads

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nettiebeads Apprentice

Hi! I'm new to this forum, but not to celiac, unfortunately. I've been doing this on my own since my dr put me on gluten-free ten years ago to cope with chronic diahrrea I'd experience for 6 weeks. Yep it worked. I haven't had the formal diagnosis, but anytime I get gluten, I get the diahrrea back. Plus lots of other fun physical stuff that I'm sure I don't need to go into detail with anyone here. So in a way I'm guess I'm lucky in that my gp figured it out right off the bat. I've read where other people have suffered for a long time before the celiac was found out. For the longest time celiac disease hasn't bothered me, but just recently there was an incident that just bummed out totally. I had a voucher to eat in a cafeteria, and the only thing available to me was the salad bar!! I wasn't in to mood for (yet another) salad!!! Then when I got home nearly three hours later (car trouble) my husband served me a pre-grilled chicken breast. Afterwords he read the label and found that the soy sauce was made with (you guessed it) wheat flour. So I've been recovering from that for the past two weeks. And he felt very very bad about that. He's cooked for me before (he's a trained sous chef) and is almost as conciencious about label reading as I am.

So, to come to the point of my mad rambling, I'd love to share experiences, coping techniques and receipes with anyone, but especially someone in the south central Missouri area.

And if anyone is interested, my husband makes a killer gluten-free breaded chicken breast that he'll be glad to share the receipe with anyone.

  • 1 month later...

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drjmarkusic Newbie

I live in Springfield, MO and was just diagnosed in May '05 after having severe abdominal pain and constipation for a two year period which was commensurate with a low iron count that continued to drop to 4 even after having been prescribed Ferrex for two months. Following an EGD I was diagnosed and have been gluten-free since. However, I had one incident when I ate at Outback Steakhouse, which has a gluten-free menu. I was in severe lower back and abdominal pain for 7 days. Believe me that will be end of that. I've found a few recipes I like made from scratch. Meatloaf is my favorite and then there are desserts like brownies. Usually I am able to use food items I purchase in the grocery store except bread and that comes from Akin's Health Food Market. I'm always willing to try something new and have been that way all of my life so that's a good thing. My wife does pretty well with my diet and when she wants something else I'll make it for her or go out to a restaurant (the restaurant is a luxury since I've been gluten-free) but eating at home is usually fun. I've learned quickly to focus on what I can eat and make it worth the while. Nice to hear from someone in the area.

nettiebeads Apprentice

Thanks for writing. Since I've been at this forum I've become bolder in addressing my celiac with drs and talked to the owner of our one and only health food store. The gluten-free offerings have been expanded so I mentioned that I probably am not the only one in the area with celiac disease. I'll probably post something on their bulletin board to start a group here. But it can't be an official support group because one has to be a member of one for two years before a new support group can be formed. And St. Louis is a little far to drive on a week night.

Anyhow, I agree with eating out to be a luxury. I love the experience of dining out, but to me the risks usually outweigh the enjoyment. But I've learned a few tricks to turn store bought stuff into tasting gourmet. Made chicken alfredo last night. I serve it over spagehtti sqaush. I poached the chicken in a broth made from herbox bullion cubes, diced up onion, green and yellow peppers, sauted that with some minced garlic. Added the Ragu classic alfredo to that. thinned it with a cheap white wine, simmered it to get the raw taste out, added the chicken and it was great! One of my favorite recipes. Sure keeps me from feeling deprived.

PreOptMegs Explorer

I am in St. Louis Missouri, and actually we play U of Missouri Rolla in basketball because they just joined our conference. WHat a small world.

  • 1 year later...
Hayleesdad Rookie
I am in St. Louis Missouri, and actually we play U of Missouri Rolla in basketball because they just joined our conference. WHat a small world.

I'm in South east MO.,but travel to springfield alot to record music.

Audiori J Newbie

St Louis here too. Wish there were more gluten-free friendly resteraunts here.

jennyj Collaborator

HHHHMMMMMM I have family in Rolla. I went to high school in Salem. I live in a small town close to Columbia.


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BFreeman Explorer

I live about 100 miles from Springfield (southeast); very rural, and work in West Plains. My two children live in Springfield so we are there a lot. I have been wondering if there were places there where people felt safe to eat. We usually just rely on Wendy's.

BF

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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