Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction-How Long Can It Last?


Regameleca

Recommended Posts

Regameleca Rookie

Hi there,

I've just recently tried to elminate gluten from my diet. My sister has just been diagnosed as having celiac's disease and though i haven't been diagnosed myself yet i have many of the symptoms. My doctor years ago advised me to cut out gluten after being diagnosed as having IBS. Also as a child i inexplicably didn't develop enamel on my back teeth and i had very delayed puberty so all signs point to a gluten intolerence if not celiac's disease itself!

I brought gluten back during a trip to Italy and sure enough the discomfort and bloating returned almost immediately, though not too badly. On the day of my return from Italy things got much worse and i broke out in an eczema type rash all over, i stopped eating gluten on arrival home but over the next few days the rash got worse and i was hit by extremely bad stomach pains and bloating. My question is, is it normal to react to gluten for the days following eating it or is it likely that i'm still eating something that is causing all this digestive woe?

thanks guys! i'm still so new to this stuff that it's all a bit confusing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pain*in*my*gut Apprentice

Hi there,

I've just recently tried to elminate gluten from my diet. My sister has just been diagnosed as having celiac's disease and though i haven't been diagnosed myself yet i have many of the symptoms. My doctor years ago advised me to cut out gluten after being diagnosed as having IBS. Also as a child i inexplicably didn't develop enamel on my back teeth and i had very delayed puberty so all signs point to a gluten intolerence if not celiac's disease itself!

I brought gluten back during a trip to Italy and sure enough the discomfort and bloating returned almost immediately, though not too badly. On the day of my return from Italy things got much worse and i broke out in an eczema type rash all over, i stopped eating gluten on arrival home but over the next few days the rash got worse and i was hit by extremely bad stomach pains and bloating. My question is, is it normal to react to gluten for the days following eating it or is it likely that i'm still eating something that is causing all this digestive woe?

thanks guys! i'm still so new to this stuff that it's all a bit confusing.

It can take weeks (or even longer) to recover from a really good glutening (which it sounds like you had)!

I hope you had a good time eating all that yummy stuff....sorry you are paying for it now! :(

Regameleca Rookie

It can take weeks (or even longer) to recover from a really good glutening (which it sounds like you had)!

I hope you had a good time eating all that yummy stuff....sorry you are paying for it now! :(

Ugh...thanks for that. I really did have a good time but the pain sure ain't worth it. I consider that my final hurrah! to gluten. The only thing i'm worried about is if i have to do a blood test, it mean's i will have to eat some gluten right?...I would really rather not...

pain*in*my*gut Apprentice

Ugh...thanks for that. I really did have a good time but the pain sure ain't worth it. I consider that my final hurrah! to gluten. The only thing i'm worried about is if i have to do a blood test, it mean's i will have to eat some gluten right?...I would really rather not...

Yes, if you plan on getting tested, you need to be eating gluten for at the very least 6 weeks (most docs say 3 months)!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,652
    • Most Online (within 30 mins)
      7,748

    beecharmer4
    Newest Member
    beecharmer4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.