Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Urinary Infections


Amyisstarving

Recommended Posts

Amyisstarving Newbie

Hi, I'm newly diagnosed (June) and have had recurrent urinary infections since I was 18 (36yr old now). I have noticed that since I have gone gluten free I no longer have the problems. I used to get 3-4 infections a year. Every time I went to the Dr. he would ask if I had burning while urinating, and frequency and I would always say NO!! I had pain in my lower abdomen and I couldn't urinate.

Now that I have gone gluten free I have noticed that I am "going" like a champ! No pain-no infections....coincidence? I have read that gluten can cause some bad swelling in your lymph nodes, and we all know that we have tons of them in our groin area. Was wondering if anyone out there has experienced anything similar? I also don't seem to be so crabby or tired like before. I have lost 18lbs so far and generally feel the best I've felt in a L-O-N-G time. This life change is, just that. A LIFE change! Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



futuredvm24 Rookie

Ive had some similiar problems abd I've only been gluten-free for about a week now. So far, it seems like my symptoms have lessened dramatically, yay!

Takala Enthusiast

I experienced the same phenomena, lots of uti's & infections. Was likely caused by my body harvesting calcium out of my bones to keep the blood levels up, because I probably wasn't absorbing it properly (my theory) and then the kidneys filtering it out. Lots of crystals in my urine. Calcium/mag supplements helped a little, but going gluten free was amazing.

eatmeat4good Enthusiast

I had years of antibiotics to treat UTI symptoms...sometimes tests were postive for bacteria but most times not. It was really awful. I had no freaking idea that being gluten free would make this problem go away. But it totally went away. I am one year gluten free and have not had one single episode of UTI infection in the entire year...not even when I get cross-contaminated. Urinary urgency was present my entire life...could hardly go an hour without needing the bathroom. Now there is no problem with that at all. Very weird, but very wonderful. I searched that topic in the archives and it turns out there are quite a few of us who have had complete remission of these symptoms on going gluten free.

Takala, that is very interesting...I could not figure out why on earth this would go away being gluten free, but your theory makes perfect sense to me. :)

mommida Enthusiast

OK There is a definate explanation for UTI's gluten related ~ Constipation. The constipation can block block the full release of the bladder (pressure feeling). That can lead up to the trapped bacteria causing the UTI.

For some it doesn't go away because of the gluten free diet sometimes causing constipation.

  • 4 months later...
angel3 Newbie

I am 33 year old female I was dx with celiac disease last year. I have been 100% gluten free for 1 year now and i felt better then i have ever felt now that i am gluten free. My both babies were placed on a gluten free diets one over eats and one has failure to thrive loss of wt and bowel problems and reflux apena at birth when drinking regular milk formula they placed her on a gluten free formula and boost as a toddler and she gained and was cured from all problem once gluten free. Also until we test them just in case Gluten free diet Dr. says is healtier any ways and better to be safe then sorry with the children to be g.f. I had all these problems as an adult after two c sections having babies dr said it came out of a silent disease to active and showing problems now. When i was a child i only had vomiting and nose bleeds in cold weather,UTI'S sometimes, stomack problems from lactose. Dr's took 32 yrs to figure out what was wrong after 3 surguries these problems .Including UTI'S,burning while urinating when i was accidently glutened at times. If i can help anyone dx your problem maybe let this be help for you to know i was depressed sick vomiting and thought it was no return and when dr's 11 mts later suffering from these massive amounts of problems i then had an answer i was a celiac and now i am cured with a good dr to walk you through and this site helped me i always refer to all the members helping others i am here today to tell you im cured and better. Theres a brighter life once you feel better and i am better. My thoughts goes out to those who have suffered and those who have died from liver and kidney failure and diabetes, bowel disease, when it was to late and they didn't know how to save them selves or what was wrong and they suffered there is life now i am here and many others to tell there story we did it and we are all getting better from what i see on here a pat on the back for all who are learning to be G.F it's hard but once you put your all you did it:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.