Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk/casein Anyone Else

GFreeMO

By GFreeMO
in Food Intolerance & Leaky Gut

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I kept feeling like I had been glutened. I had intestinal pain, D and gas, headache, the works. I knew that I hadn't had any gluten. I don't eat out and eat the same things over and over. I decided to cut out dairy 2 weeks ago. All of those symptoms went away. I was bored with it and sick of black coffee so I bought some cheese and Lactaid milk yesterday. I made a pizza with the cheese and used some of the milk in mashed potatoes and in coffee. This morning I woke up with a migraine, D, terrible gas pain and D, D, D...The cheese said no lactose per serving and the lactiad milk is lactose free. Is this what casein does to someone? If so, casein makes me feel as bad as gluten.

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Thanks for the recipe. I am going to try it. I have a blender that I got a long time ago that I used a few times before I knew better to make smoothies with Rice Dream. I guess I could stick it in the dishwasher to get it really clean and it should be safe that way.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Do I need to strain this or anything?

Kansas Rookie
Kansas
Posted

I am like you, just feeling like I was still getting gluten somehow, and I am extreme in what I put in my mouth. There was no possibility that I was getting gluten. I too have stopped the dairy, and I feel good! A lot more energy, completely normal stools, my ears are not driving me insane with itching, and the roughen areas on my fingers are improving. I thought dairy was a digestive issue, but not thinking that now. I am not much on dairy anyway, so it doesn't bother me, just have to get a little more creative in my baking.

StephanieL Enthusiast
StephanieL
Posted

If you have a really good blender, no you don't have to strain it. I have a Vita-Mix which is like a turbo jet engine :) I don't think you need to strain it though or what little body it does have will be lost. If you find it's chunky, then yes I would try it strained.

You may also want to try looking at coconut mild creamer (I LOVED it when I had to be dairy free but I am not 100% sure if it's gluten free. Turtle Hill is the maker of the one I used.) Also, if you don't have issues with nuts, there are a lot of nut "milk" alternatives out there.

smc Rookie
smc
Posted

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted
  • Author

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

smc Rookie
smc
Posted

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

Well I thought I was home free being gluten free for about 2 years and I saw you have been gluten free for about the same time. I am really mad about having to give up dairy!! But now I am at the point where I will give it up and eat the front lawn if it is the only thing that will make me feel better. I have an appointment with my GI tomorrow so I will see what he has to say but I think I may have solved my problem. Thanks!

love2travel Mentor
love2travel
Posted

After being strictly gluten free for six months, at the five-month-mark I started getting quite ill from dairy. In my case it appears to be lactose but I have eliminated dairy temporarily to be sure. It is very frustrating not to have gluten OR dairy but there are others here who must have much less. :( I hope to be one of those who is able to re-introduce dairy in the future because I REALLY miss it. LOTS.

Darn it - I teach cooking classes including various cheeses! :o

GFreeMO Proficient
GFreeMO
Posted
  • Author

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

StephanieL Enthusiast
StephanieL
Posted

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

Awesome! Glad it worked out for ya! My DS (who has Celiac) is allergic to dairy, egg, peanut, tree nuts, soy and banana. We know how to work around things :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.