Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To The Boards....

Mjohnson73

Recommended Posts

Mjohnson73 Apprentice
Mjohnson73
Posted

Hey All,

I just got tested last week for celiac disease and am waiting for the results... I have a ton of the symptoms (not going to go through them here) but my Rheumatologist (who i see for Fibromyalgia) suggested that even if the tests come back negative (not sure which tests he did) I should follow the gluten-free diet anyway... so here I am :)

I am working on getting completely gluten-free...

I do have a question... My son who is 6 who is about the size of a 4 year old, just went and saw the endocrinologist at Children's Hospital in Boston due to his Short Stature and Slow growth... when I mentioned that I was tested for Celiac, the Dr. said as soon as I find out my results, that i should call her cause it might be celiac that is causing his growth delay (he was on the charts until about the time I started feeding him solid foods and then he dropped off the growth charts)...he doesn't seem to have any symptoms but she said it might be a silent form of celiac....

Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

--maya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cgd Newbie
cgd
Posted

Yes, it sounds right! celiac disease can most definitely slow growth and cause failure to thrive in children. You're wise to get him tested, since immediate relatives are at risk of having this genetic thing we share. You've come to the right place for support and information. Welcome!

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author
Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

<{POST_SNAPBACK}>

Nope I was eating gluten right up through the testing... I stopped after the tests...

I just hate having to wait for an entire week to find out...sigh... He said the tests were very specific and had to be sent out to I think he said California or something...

I will mention to his Pediatrician as well...

--Maya

tarnalberry Community Regular
tarnalberry
Posted
Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

<{POST_SNAPBACK}>

It's absolutely true that celiac disease could keep him from absorbing nutrients and hence not gaining weight and grow properly! I say get him tested regardless of your results!

And you're definitely welcome to the board! :-)

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Hey all,

Thanks for the welcomes :)

I am still working on getting 100% gluten-free... but I am having trouble reading labels for "Hidden gluten"... is there a list somewhere that I might be able to take to the grocery store with me?

thanks!

--Maya

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ElenaM
      - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of ...
    2. JulieRe
      - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

      Hi Everyone, I do appreciate your replies to my original post. Here is where I am now in this journey. I am currently seeing a Naturopath. One thing I did not post before is that I take Esomeprazole for GERD. My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow. She has put me on some digestive enzymes...
    3. Ceekay
      - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

      I'm sure it's chemically perfect. Most of them taste lousy!
    4. Rejoicephd
      - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

      Hi @JulieRe. I just found your post. It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida. I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment. In the meantime, I have been working with a functional...
    5. Scott Adams
      - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct r...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    catsrlife
    Newest Member
    catsrlife
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ElenaM
      I think I am gluten intolerant

      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.