Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To The Boards....

Mjohnson73

Recommended Posts

Mjohnson73 Apprentice
Mjohnson73
Posted

Hey All,

I just got tested last week for celiac disease and am waiting for the results... I have a ton of the symptoms (not going to go through them here) but my Rheumatologist (who i see for Fibromyalgia) suggested that even if the tests come back negative (not sure which tests he did) I should follow the gluten-free diet anyway... so here I am :)

I am working on getting completely gluten-free...

I do have a question... My son who is 6 who is about the size of a 4 year old, just went and saw the endocrinologist at Children's Hospital in Boston due to his Short Stature and Slow growth... when I mentioned that I was tested for Celiac, the Dr. said as soon as I find out my results, that i should call her cause it might be celiac that is causing his growth delay (he was on the charts until about the time I started feeding him solid foods and then he dropped off the growth charts)...he doesn't seem to have any symptoms but she said it might be a silent form of celiac....

Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

--maya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cgd Newbie
cgd
Posted

Yes, it sounds right! celiac disease can most definitely slow growth and cause failure to thrive in children. You're wise to get him tested, since immediate relatives are at risk of having this genetic thing we share. You've come to the right place for support and information. Welcome!

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author
Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

<{POST_SNAPBACK}>

Nope I was eating gluten right up through the testing... I stopped after the tests...

I just hate having to wait for an entire week to find out...sigh... He said the tests were very specific and had to be sent out to I think he said California or something...

I will mention to his Pediatrician as well...

--Maya

tarnalberry Community Regular
tarnalberry
Posted
Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

<{POST_SNAPBACK}>

It's absolutely true that celiac disease could keep him from absorbing nutrients and hence not gaining weight and grow properly! I say get him tested regardless of your results!

And you're definitely welcome to the board! :-)

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Hey all,

Thanks for the welcomes :)

I am still working on getting 100% gluten-free... but I am having trouble reading labels for "Hidden gluten"... is there a list somewhere that I might be able to take to the grocery store with me?

thanks!

--Maya

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    3. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    5. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,264
    • Most Online (within 30 mins)
      7,748
    butteguy
    Newest Member
    butteguy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.