Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Eating...will I Feel Better?!


WifeMamaRN2be

Recommended Posts

WifeMamaRN2be Newbie

Hi everyone! : )

As some of you wonderful posters know I am very new to this. I have been having strange symptoms for a year and a half, some longer. I have had lots of tests like everyone here, but no one mentioned being tested for Celiac. The PA I was seeing did say at one point to go off gluten for two weeks and if that didn't work to go dairy free for two weeks. I kind of brushed it off as I didn't realize gluten could be giving me ALL these symptoms until a few days ago. So my question is-did you feel like you would never feel better? I have been living with these symptoms pretty much daily for so long I can't remember what it's like to feel well. Did you feel like that and if so are you better now that you are gluten-free? It's frustrating because as amazing as my husband is, he isn't living it so I think it's hard for him to understand. I feel like everyone thinks I'm just a hypochondriac because I keep coming up with new symptoms, but really they just all tie together. Only my second day of gluten-free, and today I am starting dairy free also. I'm truly praying that I will soon feel better. And I will be praying that all of you do, too! : )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutentheintolerant Rookie

Before I discovered a gluten-free diet I would feel tired every day. Passing stool was difficult and very tiring. I noticed the first gluten-free meal immediately because I wasn't tired after eating it. I always used to want to sleep after having eaten something.

Actually, I somehow got contaminated today, yesterday or the day before and a painful toilet visit today confirmed that. Now I am remembered of what I used to feel like and boy, was it unpleasant. Headaches, stomach ache, tiredness, moodiness and very sticky stool ... I used to wonder if there was ever a day that I wasn't in agony. Most of that belongs to the past, with the occasional mishap.

I think going gluten-free for two weeks is far too short. If you've never been on a gluten-free diet before and you live with people that do not eat gluten-free, you will no doubt make mistakes and you might interpret those as a sign of the diet not working even though it's down to something else.

You might also discover you're sensitive to other food stuffs that could cloud the results of your diet making you think nothing has changed. (For me it's dairy products, have to watch my intake)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748

    Hughesy
    Newest Member
    Hughesy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.