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Unsure If I Have Celiac?

JH58

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JH58 Newbie
JH58
Posted

Hi,

this is my first time here,I have been suffering for 15yrs i'm now 58yrs,I was told 15yrs ago I has IBS saw a consultant 10yrs ago as symptoms was getting worse and I was vomiting with some of the bouts he did barium enema and said I had diverticular disease but not bad enough for surgery and that was it he left me to deal with the symptoms(constipation,diareah,left sided cramps bloating and occasional severe abdominal pain with severe vomiting and diareah)I have suffered badly over the years and 5 weeks ago saw a new GI cosultant who seems very good he did sigmoidoscopy & CT scan of abdomen and pelvis this still just showed up the diverticular disease,since then I have had 3 really bad bouts of the severe abdo pain with vomiting( starts with low abdo pain where i'm doubled with pain then vomiting every 10/15 mins for about 4 hours then diareah,I cannot leave the bathroom for hours.I went back to see GI consultant today and he did a blood test for celiac but doesn't really think I have that,my other symptoms are,fatigue,aching joints/bones,balance problems,foggy head.He said he will also do colonoscopy, does anyone recognise these symptoms,Thanks

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lucia Enthusiast
lucia
Posted

I'm shortlisting your symptoms here:

-severe abdo pain with vomiting

-constipation

-diareah

-left sided cramps

-bloating

-fatigue

-aching joints/bones

-balance problems

-foggy head

I've heard people on this board relate every one of your symptoms to gluten except "left-sided" cramps and vomiting. That is remarkable considering how long (& seemingly incongruent) your list is.

The best way to tell if you are reacting to gluten is to stop eating it and see what happens. As soon as I stopped eating gluten, within just five days, I knew I should be off it. Eliminating gluten from your diet won't hurt you, but it may have extraordinary effects on your health. I highly recommend you do this, whatever your official diagnosis.

eatmeat4good Enthusiast
eatmeat4good
Posted

I have no idea why a Dr. would not suspect Celiac with your symptoms. Every single one of them is on the list of Celiac symptoms. I had the left sided pain and nausea and vomiting too. It took a while...but I did heal. Even if you don't test positive for it, and many don't, you should still try strictly gluten free. It makes me sick to know how many women are sick with this and are told it is fibromyalgia or IBS.

I lost 7 years of my life...so I know how miserable you are.

The good news is, if it is Gluten Sensitivity or Celiac, all you have to do is give up gluten.

You can do that whether or not your Dr. agrees.

So many people have written stories just like yours...years and years of suffering for nothing.

You may have found your answer.

I'm very hopeful for you.

Give it a good try. And welcome to the board. Ask any qustions as you begin yoru journey. There is a lot to know about how to avoid trace gluten and cross-contamination. But if this is it, you are about to get really well.

JH58 Newbie
JH58
Posted
  • Author

I have no idea why a Dr. would not suspect Celiac with your symptoms. Every single one of them is on the list of Celiac symptoms. I had the left sided pain and nausea and vomiting too. It took a while...but I did heal. Even if you don't test positive for it, and many don't, you should still try strictly gluten free. It makes me sick to know how many women are sick with this and are told it is fibromyalgia or IBS.

I lost 7 years of my life...so I know how miserable you are.

The good news is, if it is Gluten Sensitivity or Celiac, all you have to do is give up gluten.

You can do that whether or not your Dr. agrees.

So many people have written stories just like yours...years and years of suffering for nothing.

You may have found your answer.

I'm very hopeful for you.

Give it a good try. And welcome to the board. Ask any qustions as you begin yoru journey. There is a lot to know about how to avoid trace gluten and cross-contamination. But if this is it, you are about to get really well.

Thank you so much for your reply i'm hoping the test comes back positive,it will answer a lot of questions but if it is negative I will still give gluton free a try.

JH58 Newbie
JH58
Posted
  • Author

Does anyone know if taking probiotics will affect the blood test result? Thanks

beebs Enthusiast
beebs
Posted

Does anyone know if taking probiotics will affect the blood test result? Thanks

They won't affect the test. With your list of symptoms I wouldn't be surprised if it was.

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      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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