Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Next Week....scared


alexsami

Recommended Posts

alexsami Contributor

OK, im having this next week....what to expect...how bad is it...i have been gluten free for a month...but doc said it would still show up.....will be eating gluten for the next week however :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gluten Free Traveller Newbie

Don't worry, it's not bad at all. I was really freaked out before mine but it was over before I knew it.

In which country are you? You will get the option of getting it done with or without sedation..Take it!! I have friends who said no to sedation and reported it wasn't very pleasant. I did and the last thing I remember was going into theatre and being asked to lie on my side. A (very cute) doctor then put a small needle into my hand to give me sedation and then I was out..

The next thing I remember was when I woke up in the recovery area of the hospital and my dad was beside me. I was pretty drosey as apparently I kept repeating myself and telling him it looked as though he had 4 eyes but other than that it was fine.

You will be fine and it will be done before you know it! I hope you get the results you're looking for!

Laura

alexsami Contributor

Thanks, im in the U.S.

ravenwoodglass Mentor

It's not a hard procedure at all. You do have a risk of having a false negative so do go back on the diet after it is done. This is especially the case if you had positive blood work. Positive bloodwork trumps negative biopsy. If going back on gluten until the test is done makes you very ill do let your doctor know right away.

love2travel Mentor

Hmmm...I agree that being back on gluten for such a short time could potentially result in false negatives. Remember to request 8-11 biopsies - NOT just 3 or 5. Only 40% of biopsies in the US and Canada are done CORRECTLY because of too few biopsies.

The scope itself is no problem. I worried for nothing. I had both the gastroscopy and colonoscopy done at the same time and was given memory-erasing drugs. It is easier than going to the dentist for many! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.