Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Tired!

bb1987

By bb1987
in Introduce Yourself / Share Stuff

Recommended Posts

bb1987 Newbie
bb1987
Posted

I have been incredibly tired throughout my teens and early twenties, along with other symptoms. I am hoping that I might finally have my answer! Did/Does anyone else struggle with debilitating fatigue? I don't even know what it is like to have energy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

Yes fatigue is definitely a symptom! Also, do you have something called brain fog? That's another sign and they typically go hand in hand.

bb1987 Newbie
bb1987
Posted
  • Author

Yes fatigue is definitely a symptom! Also, do you have something called brain fog? That's another sign and they typically go hand in hand.

Yes! Some days I feel really "out of it". I feel like I am 70 years old, not 24. What symptoms do you have?

eatmeat4good Enthusiast
eatmeat4good
Posted

This is the most exciting part about being gluten free. No more being tired to the bone. No more sleepy groggy fatigue and no more brain fog....unless of course I get a trace of gluten...then it all comes back.

It really was most exciting to not have to live like the walking dead. It was most definitely gluten related for me. Slept too much of my life away...happy to be awake and alive and alert.

emmilyvictoria Newbie
emmilyvictoria
Posted

Before going gluten free I couldn't go more than a few hours without taking a nap and I just wanted to sleep all day. Then about after a week after going gluten free I seriously felt like I had all the energy in the world :) But I also have been diagnosed with POTS which also just makes me feel lazy.

New Community Member Explorer
New Community Member
Posted

I have been incredibly tired throughout my teens and early twenties, along with other symptoms. I am hoping that I might finally have my answer! Did/Does anyone else struggle with debilitating fatigue? I don't even know what it is like to have energy!

Are you on a gluten free diet because of celiac? I'm extremely tired all the time and I've been gluten free for 3 weeks. I guess patience is key. They say it takes time...

bb1987 Newbie
bb1987
Posted
  • Author

Are you on a gluten free diet because of celiac? I'm extremely tired all the time and I've been gluten free for 3 weeks. I guess patience is key. They say it takes time...

thanks for all of your replies!! I have just started the gluten free diet. I haven't officially been diagnosed with celiac or gluten intolerance, but I am hoping this helps me. I was noticing that my stomach was upset and crampy when I ate gluten. I already feel much better, but haven't noticed my fatigue going away yet either! I am ready to have energy like everyone else, as I am sure you are too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizatmnsu Newbie
lizatmnsu
Posted

I personally have been gluten free for just over a year after I found out I was gluten intolerant. I never had the blood test for celiac as I learned about the test after I was gluten free and for the blood test to show anything I would have had to go back to eating gluten which I was not willing to do after feeling so good. I did notice a significant increase in energy from about months 2-6 but now I am extremely tired all the time again. I am not sure if it is related or just because it is my senior year in college and my body is ready for real life to start but if anyone has any ideas I would love to hear them. Thanks.

Roda Rising Star
Roda
Posted

Get your iron, ferritin, vitamin D, and thyroid checked. They all can contribute to feeling tired. The first three if low, can cause fatigue and tired symptoms. If the thyroid is hypo it can too.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

It's also possible that another food is causing reactions in you. I'm finding that soy completley zaps my energy. When I ingest it I don't just get tired..it's like I've been drugged.

I guess my best advice would be to keep a log of what foods you eat, including brands. Log any reactions you have and see if you can make a connection. You could also go on a limited diet and try adding in one food a week to see if you react.

Unfortunately there doesn't seem to be any reliable test for these sensitivities/intollerances. You have to be your own dectective.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748
    S.Craigwell
    Newest Member
    S.Craigwell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.