Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Lactose Intolerance...

Aseyan

Recommended Posts

Aseyan Newbie
Aseyan
Posted

Hi All,

I was newly diagnosed with celiac about a month ago (blood test) after I had been feeling really sick every time I ate since my son was born 6 months ago. I didn't have a problem with gluten prior to my son's birth but we're thinking that his birth kind of kicked it into effect. When I eat gluten I luckily enough don't have tummy troubles. I get tingly hands/feet, visual disturbances, brain fog, anxiety, trouble with balance etc.

About a week after I cut gluten out of my diet, I started to get really sick to my stomach, to the point of having to run to the bathroom about once every hour. And it reminded me of the lactose intolerance I had when I was a kid. Is it possible that by cutting out gluten, it kicked my lactose intolerance back into gear? I haven't had issues with dairy for ages.

And if so, are there any resources for diets? I'm at a complete loss at this point, I don't even know where to start.

Thanks all,

Jennie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Yes and no.

You are probably going through withdrawal/detox from gluten. Also, many celiacs are intolerant to milk - either while trying to heal or permanently. It's probably good to go gluten and milk (casein and lactose) free for a while, then try adding back milk.

Don't be surprised if other food problems pop up in the near future. They could be temporary as you heal, or permanent.

Good luck and ask lots of questions!

And yes, there are lots of celiac recipe/diet books out there. Check your local library first and see what's free.

ravenwoodglass Mentor
ravenwoodglass
Posted

Are you being really careful to prevent CC? You need a new toaster for just gluten-free bread, to replace scratched nonstick pans, wooden utensils and strainers. It helps to go with whole unprocessed foods at first and do avoid restaurants. Do not bake with flour for others and if your significant other eats gluten make sure that teeth get brushed well before kissing. The advice to avoid dairy is a good one also. Add it back in after you have been feeling well for a while to see if you tolerate it. You could be going through withdrawl but you could also be getting cross contaminated as the diet is tricky at first and reacitons can change and become more severe after we go gluten free.

eatmeat4good Enthusiast
eatmeat4good
Posted

It's very common to become intolerant of dairy after giving up gluten. I didn't believe it at first, even though I read a lot of posts on it here, I just didn't want to think it would happen to me. But it did. Just a few months after giving up gluten had to give up dairy...(well most of it...I still use a dab of butter) I keep hoping I will be one who can return dairy to my diet, but not so far...and I'm at one year gluten-free. Like Ravenwood said, watch for all traces of gluten and sources of cross contamination. Best of luck.

love2travel Mentor
love2travel
Posted

It's very common to become intolerant of dairy after giving up gluten. I didn't believe it at first, even though I read a lot of posts on it here, I just didn't want to think it would happen to me. But it did. Just a few months after giving up gluten had to give up dairy...(well most of it...I still use a dab of butter) I keep hoping I will be one who can return dairy to my diet, but not so far...and I'm at one year gluten-free. Like Ravenwood said, watch for all traces of gluten and sources of cross contamination. Best of luck.

This has happened to me, too. At first I was wondering how the heck it would occur and was so pleased that I seemed to be fine with dairy, then BANG. My intolerance seemed to literally happen overnight after being gluten free for five months. No dairy for me for now, either. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.