Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7 Months Of Testing


AVR1962

Recommended Posts

AVR1962 Collaborator

Saw my new doc today. Results were not back on my MRI however he looked at all the tests I have had over the past 7 months, looked at what I was doing to supplement (vit) and said that he could get in trouble for officially calling this Celiac because I didn't have a biopsy on the intestines, however he was diagnosing me with Celiac, put it in my records and told me we would now proceed rather than trying to eliminate. I am to have a diabetes test and he wants to check and see how my parathyroid and thyroid are functining compared to my last tests. Told me my supplements were all good, I actually thought he would be shocked but he said they all fell in line with what Celiacs are normally deficient on, and then set me up for more blood work.

Also, found out something that might be helpful for those who ar on meds to shrink thyroid nodules.....all supplements should be taken 6+ hours after the thyroid med as some supplements have properties in them that can bind to the thyroid meds and make them work less affectively.

The diganosis was not a shocker but it was a relief!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Glad you finally got a diagnosis and it sounds like you have a good doctor. With the diabetes test make sure they do an A1C as well as blood glucose levels. If you are still ill from gluten or have recently been sick that can raise the BG levels. The A1C will help them decide if you really have BS issues or if it is elevated because of illness. The reason I caution is because I was misdiagnosed with diabetes when I went to the doctor for help with a glutening early on in the diet. He tried to push meds but I instead did multiple BG tests with my home meter and he ordered an A1C the next visit which showed me to be in perfectly normal levels. If the tests do show that you are prediabetic try adjusting your diet first if you can before the meds and be aware that sugar alcohols can upset your tummy so if you can go with something else or just reduce your sugar and carb intake that might be better.

Bubba's Mom Enthusiast

It sounds like you have a good Dr? I'm happy for you that you've gotten your Dx without a bunch more tests and the run around.

Now..just eat gluten-free and things should start healing. :D

AVR1962 Collaborator

Glad you finally got a diagnosis and it sounds like you have a good doctor. With the diabetes test make sure they do an A1C as well as blood glucose levels. If you are still ill from gluten or have recently been sick that can raise the BG levels. The A1C will help them decide if you really have BS issues or if it is elevated because of illness. The reason I caution is because I was misdiagnosed with diabetes when I went to the doctor for help with a glutening early on in the diet. He tried to push meds but I instead did multiple BG tests with my home meter and he ordered an A1C the next visit which showed me to be in perfectly normal levels. If the tests do show that you are prediabetic try adjusting your diet first if you can before the meds and be aware that sugar alcohols can upset your tummy so if you can go with something else or just reduce your sugar and carb intake that might be better.

Thank you very much for this info. I am with you, I would very much rather control medical issues thru diet. All the numbrs with diabetes are new to me but I guess I will be learning them too. I really appreciate the reply!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,216
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.