Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Results

asouthall

Recommended Posts

asouthall Newbie
asouthall
Posted

For quite some time, I have experienced stomach pain, mouth ulcers, easy bruising, foul smelling bms. I headed to a much recommended GI doctor. My blood test results were negative. I just received my endoscopy results in the mail and I have my follow up appointment on Monday.

Biopsy results: benign- duodenum

Biopsy results: inflammation- no infection- stomach

I have been gluten free since the upper endoscopy and feel 100x better. Do they biopsy results look like possible celiac results?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Hello and welcome to the board.

While celiac begins with inflammation, I would suspect your results will be read as negative for celiac. A positive requires damage to the villi in the duodenum/small intestine. Your are probably in the very early stages of developing celiac, or you may be "merely" gluten intolerant. I am glad you are feeling better on the gluten free diet :) You do not need to be a celiac to find improvement with the diet..

ravenwoodglass Mentor
ravenwoodglass
Posted

For quite some time, I have experienced stomach pain, mouth ulcers, easy bruising, foul smelling bms. I headed to a much recommended GI doctor. My blood test results were negative. I just received my endoscopy results in the mail and I have my follow up appointment on Monday.

Biopsy results: benign- duodenum

Biopsy results: inflammation- no infection- stomach

I have been gluten free since the upper endoscopy and feel 100x better. Do they biopsy results look like possible celiac results?

Those are pretty odd results from what I have seen of other reports. Did your doctor only do one biopsy of the duodenum? He should have taken multiples from different areas. What did they find that was 'benign'? I am not a medical professional but that sounds more like they were looking for signs of cancer not celiac or you may have celiac changes but the area that they biopsied still had some villi intact.

The fact that you are feeling '100% better' is the most significant finding. Do get actual copies of your results when you go for the follow-up appt. and be sure to tell the doctor the response you have had to being gluten free. In the end you don't need a doctors permission to be gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results. When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests. Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and...
    2. Scott Adams
      - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
    3. Scott Adams
      - Scott Adams replied to Sicilygirl's topic in Coping with Celiac Disease
      2

      fed up italian

      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant l...
    4. trents
      - trents replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    5. trents
      - trents replied to Art Maltman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      My 5 months of Struggle

      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,508
    • Most Online (within 30 mins)
      7,748
    Mafiaprincess
    Newest Member
    Mafiaprincess
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Feeling ill

      By knitty kitty · Posted

      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results.  When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests.  Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and a false negative biopsy may result.  As uncomfortable as it is, finish all testing before going gluten free.  
    • Scott Adams
      Feeling ill

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      fed up italian

      By Scott Adams · Posted

      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Feeling ill

      By trents · Posted

      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      My 5 months of Struggle

      By trents · Posted

      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
×
×
  • Create New...