Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Symptoms In Brother


kyga2

Recommended Posts

kyga2 Apprentice

I had to give up gluten (and casein) a couple years ago, and my daughter, who is 2, has never been able to tolerate gluten or dairy herself. Because I have been living it, and because I have learned a lot from different sources, including these message boards, I am convinced my older brother has celiac disease, or at the very least a severe intolerance. He has been intolerant of milk his whole life, and when he was a child he had dark stains on his teeth. No one could figure out why, so my parents just had them capped. My brother has been diagnosed with IBS, and has had 'bathroom troubles' as long as I've known him. He has always been rail thin, and cannot gain weight. Recently, he has told me that he is tired all the time, and he gets frequent, painful mouth sores. Yes, alarm bells all over the place.

However, I have talked with him about this in the past and he kinda blew me off. Now that I know about the mouth sores and fatigue, I feel duty bound to say something once again. I think he is afraid of eating 'weird' food and also of being different. He is 41, but I guess we never get over not wanting to be different.

I need words of wisdom or encouragement for talking to him. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Maybe he will listen. It sounds like he is getting to a point that he is either wanting or having to deal with the issues. I really don't have any words of wisdom as for talking to him. I do feel your concern, however, since I too believe my brother suffers from celiac. He also has been complaining of more issues lately. He too is lactose intolerent, has sarcoidosis, rash that never resolves, etc. I've tried to talk to him in the past but he just doesn't want to hear it. He said he would rather die than to give up his beloved bread and beer. Well, that indeed will probably be what does him in eventually. Sad as it is I have had to let go and not let it bother me. I hope it is different with your brother. Good luck with it!

Bubba's Mom Enthusiast

I have 2 sons that are in their 30's and have symptoms. When I told them they should be tested they both said no. The older one even agrees that he *probably* has it!

I see signs in my hubby too and he refuses to be tested. He has other auto-immune diseases too, so it's not out of the question.

I guess the best we can do is to tell them and point out some of their symptoms that fit? It may not do any good right now, but as their health fails more at least they know what they should be tested for. :blink:

As they say.."you can lead a horse to water, but you can't make them drink".

I have to say I find it rediculous for someone to suffere from symptoms when they have the means to make themselves better. I dunno if it's a "guy thing"? I know I'm making a wide sweeping statement when I say as a rule men are not nurturers, and that includes nurturing themselves. Some are much better than others in that area.

Hopefully, your brother will listen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    2. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    4. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,838
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.