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My Daughter's Test Results


crusch

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crusch Newbie

I was recently diagnosed as being gluten sensitive by a Registered Dietician. My 14 year old daughter complains of not feeling well almost daily and this has been going on for a long time. At her recent well visit I mentioned to our Pediatrician that I am Gluten Sensitive and my husband was recently diagnosed with Type 2 Diabetes. The doctor ordered bloodwork (glucose, cholesterol & celiac panel) for my daughter and while we were waiting to go in for the tests I had her eliminate gluten for a couple days. She was feeling better until she ate a 7 layer taco dip that had cheese and sour cream in it. I now suspect dairy sensitivity and I have had the same problems that I didn't recognize until I learned I was gluten sensitive and started researching.

I'm providing this history because I would like to understand my daughter's test results - if I am reading them accurately I think this is saying she does not have Celiac Disease...but does this have any bearing on whether or not she is gluten sensitive?

Immunoglobulin (IgA) Value 144 (Range & Units listed at 52-192 mg/dL

tTG, IgA Value 3.6 (Range & Units listed at 0.0 - 19.9 Units)

What do these test results signify? And I've been reading up on false negatives so if this is a negative result but she seems to improve on a gluten-free diet, what should my next steps be in getting her healthy? Should I take her to a dietician as well as changing her diet?


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Bubba's Mom Enthusiast

I'm one of those that had normal blood tests, but have Celiac. I had easily visable damage when my endoscope was done.

If your daughter has Celiac disease, the tips of the villi that digest lactose may be gone? It would make her have problems with dairy. OR it could be that her problem IS dairy.

If you want to push for an endoscope she will have to be consuming gluten in good amounts for some time for damage to show up.

If she's already gluten-free a scope won't be much help.

If she's doing better gluten-free aside from the dairy issues, it might be a good idea to keep her gluten-free and dairy for a while? If she has villi damage, once they heal she may be able to handle dairy just fine.

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    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
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      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
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