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My Daughter's Test Results


crusch

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crusch Newbie

I was recently diagnosed as being gluten sensitive by a Registered Dietician. My 14 year old daughter complains of not feeling well almost daily and this has been going on for a long time. At her recent well visit I mentioned to our Pediatrician that I am Gluten Sensitive and my husband was recently diagnosed with Type 2 Diabetes. The doctor ordered bloodwork (glucose, cholesterol & celiac panel) for my daughter and while we were waiting to go in for the tests I had her eliminate gluten for a couple days. She was feeling better until she ate a 7 layer taco dip that had cheese and sour cream in it. I now suspect dairy sensitivity and I have had the same problems that I didn't recognize until I learned I was gluten sensitive and started researching.

I'm providing this history because I would like to understand my daughter's test results - if I am reading them accurately I think this is saying she does not have Celiac Disease...but does this have any bearing on whether or not she is gluten sensitive?

Immunoglobulin (IgA) Value 144 (Range & Units listed at 52-192 mg/dL

tTG, IgA Value 3.6 (Range & Units listed at 0.0 - 19.9 Units)

What do these test results signify? And I've been reading up on false negatives so if this is a negative result but she seems to improve on a gluten-free diet, what should my next steps be in getting her healthy? Should I take her to a dietician as well as changing her diet?


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I'm one of those that had normal blood tests, but have Celiac. I had easily visable damage when my endoscope was done.

If your daughter has Celiac disease, the tips of the villi that digest lactose may be gone? It would make her have problems with dairy. OR it could be that her problem IS dairy.

If you want to push for an endoscope she will have to be consuming gluten in good amounts for some time for damage to show up.

If she's already gluten-free a scope won't be much help.

If she's doing better gluten-free aside from the dairy issues, it might be a good idea to keep her gluten-free and dairy for a while? If she has villi damage, once they heal she may be able to handle dairy just fine.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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