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My Daughter's Test Results


crusch

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crusch Newbie

I was recently diagnosed as being gluten sensitive by a Registered Dietician. My 14 year old daughter complains of not feeling well almost daily and this has been going on for a long time. At her recent well visit I mentioned to our Pediatrician that I am Gluten Sensitive and my husband was recently diagnosed with Type 2 Diabetes. The doctor ordered bloodwork (glucose, cholesterol & celiac panel) for my daughter and while we were waiting to go in for the tests I had her eliminate gluten for a couple days. She was feeling better until she ate a 7 layer taco dip that had cheese and sour cream in it. I now suspect dairy sensitivity and I have had the same problems that I didn't recognize until I learned I was gluten sensitive and started researching.

I'm providing this history because I would like to understand my daughter's test results - if I am reading them accurately I think this is saying she does not have Celiac Disease...but does this have any bearing on whether or not she is gluten sensitive?

Immunoglobulin (IgA) Value 144 (Range & Units listed at 52-192 mg/dL

tTG, IgA Value 3.6 (Range & Units listed at 0.0 - 19.9 Units)

What do these test results signify? And I've been reading up on false negatives so if this is a negative result but she seems to improve on a gluten-free diet, what should my next steps be in getting her healthy? Should I take her to a dietician as well as changing her diet?


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Bubba's Mom Enthusiast

I'm one of those that had normal blood tests, but have Celiac. I had easily visable damage when my endoscope was done.

If your daughter has Celiac disease, the tips of the villi that digest lactose may be gone? It would make her have problems with dairy. OR it could be that her problem IS dairy.

If you want to push for an endoscope she will have to be consuming gluten in good amounts for some time for damage to show up.

If she's already gluten-free a scope won't be much help.

If she's doing better gluten-free aside from the dairy issues, it might be a good idea to keep her gluten-free and dairy for a while? If she has villi damage, once they heal she may be able to handle dairy just fine.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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