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Test Results For 1 Year Old

usafgirl77

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usafgirl77 Newbie
usafgirl77
Posted

My 1 year old (just turned 2) had diarrhea for 31 days straight (severe too). He was admitted to the hospital in Pensacola right after July 4th. They ran tests on him but released him with no diagnosis. Fast forward 3 weeks, I had to fight for his test results. The doctor finally retrieved them and wanted my son in IMMEDIATELY. He told me that his celiac test results were extremely high and to start him on a gluten free diet immediately. A referral was put in for a pediatric gastroenterologist for an offical diagnosis. Well he saw the doctor 2 wks ago and he said to put my son on a regular diet for 4 weeks and they'll do a biopsy, then do the gluten free for 4 wks and another biopsy afterward. I disagreed, so I'm taking my son to another doctor in Mobile Alabama. I got his test results for myself last week after finding out that the specialist said everything looked okay...okay??? He didn't see the results. I need to know if this result alone could diagnose my son with celiac disease, as ANY gluten in his diet causes painful gas and diarrhea (explosive foul smelling) for days.

Test results from hospital...

Test Name: Enda

Test Result: Tissue Transglutaminase tTG Ab Iga 181

Endomysial Antibody IgA Titer 1:80 <P>

Normal Range: Tissue tTg Ab IgA 0 to 19

Endomysial IgA Titer <1:10 <P>

It also says this below the test, not sure if it means anything.

Tissue Transglutamin

IGA: H168

Reference range: 0 to 19

Can anyone please tell me if I'm right about this level being excessively high and is it enough to diagnose celiac like my sons pediatrician said it would. (He said that when it's that high, a biopsy isn't really necessary). Thanks

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Skylark Collaborator
Skylark
Posted

The hospital results seem a little garbled. Is the Endomysial 1:80 your son's result and <1:10 the "normal" range?

If he has both positive endomysial and that high TTG twice I wouldn't think a biopsy is necessary. It's hard to get antibodies in babies so celiac is pretty certain. If he were my kid I think I would take him off gluten and ask for repeat antibodies in six months. If they go away, you have a pretty good answer without the biopsy.

mushroom Proficient
mushroom
Posted

I agree with Skylark. I would not put him back on gluten.

pain*in*my*gut Apprentice
pain*in*my*gut
Posted

My 1 year old (just turned 2) had diarrhea for 31 days straight (severe too). He was admitted to the hospital in Pensacola right after July 4th. They ran tests on him but released him with no diagnosis. Fast forward 3 weeks, I had to fight for his test results. The doctor finally retrieved them and wanted my son in IMMEDIATELY. He told me that his celiac test results were extremely high and to start him on a gluten free diet immediately. A referral was put in for a pediatric gastroenterologist for an offical diagnosis. Well he saw the doctor 2 wks ago and he said to put my son on a regular diet for 4 weeks and they'll do a biopsy, then do the gluten free for 4 wks and another biopsy afterward. I disagreed, so I'm taking my son to another doctor in Mobile Alabama. I got his test results for myself last week after finding out that the specialist said everything looked okay...okay??? He didn't see the results. I need to know if this result alone could diagnose my son with celiac disease, as ANY gluten in his diet causes painful gas and diarrhea (explosive foul smelling) for days.

Test results from hospital...

Test Name: Enda

Test Result: Tissue Transglutaminase tTG Ab Iga 181

Endomysial Antibody IgA Titer 1:80 <P>

Normal Range: Tissue tTg Ab IgA 0 to 19

Endomysial IgA Titer <1:10 <P>

It also says this below the test, not sure if it means anything.

Tissue Transglutamin

IGA: H168

Reference range: 0 to 19

Can anyone please tell me if I'm right about this level being excessively high and is it enough to diagnose celiac like my sons pediatrician said it would. (He said that when it's that high, a biopsy isn't really necessary). Thanks

No way would I put my kid back on gluten with those test results!! :o He had those tests on July 4th and no doc said anything to you about it until you requested them yourself 3 weeks later? Ugghhh....

He is positive for both ttg and the endomysial antibody, he has Celiac. Your pediatrician is correct.

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with the others. Your child is clearly celiac. Keep him gluten free and your ped can check if those levels are going down in a few months. You have all the diagnosis you need and there is no need to poison him to prove it to the GI doctor.

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