Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally, Got Myself Tested Today...

kendon0015

Recommended Posts

kendon0015 Rookie
kendon0015
Posted

Back this past February, I had two pints of draught Blue Moon beer (wheat beer), and the next day spent over an hour in the bathroom. My first thought was that the beer was bad as I never has this problem before. Two weeks later I had the same bowel urgency (loose but formed stool) and spent another hour in the bathroom. Long story short as this repeated every two or three weeks, I decided to go gluten free in May. This decision was based on having Hashimotos, osteopenia, low D, and elevated homocysteine. I felt better immediately for the next three months and had the bonus of losing 8 pounds. The last month or so, I'm having the bathroom episodes all over again. Still gluten free, and strict about it. I haven't cheated once.

I went to the GI doctor last week and he has ordered blood work for Celiac and IBS. He didn't think it was IBS but is checking anyway. Also, stool samples for bacteria since I had recurring UTI's over last fall and winter...around 4-5 of them using Cipro each time. I went to the lab today and hopefully will have results by late next week. I LOVE this doctor. He is open minded, thorough, and current with gluten intolerant issues. I just hope that at least of these tests shows something.

Thanks for "listening".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newbee Contributor
Newbee
Posted

You did consume some gluten containing food before having the blood test, right? I ask because you need to be eating food with gluten in it for the tests to come out correctly. Otherwise you may come back with a false negative result. My doctor did not tell me this when I had my blood test. Luckily I was eating gluten anyway, but I was disturbed that no one told me about this before I had the test.

mushroom Proficient
mushroom
Posted

Yes, unfortunately if you have been gluten free (or mostly so) for the last four months the likelihood of positive bloodwork is slim. You may have been getting some gluten cross-contamination from an unlikely source - lip gloss, meds, something unexpected. Did you start using any new products in the last month?

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Do you take thyroid meds? Are they gluten free? (same with your other meds but I hear the most popular thyroid med isn't gluten-free.) just a thought-- maybe you're getting gluten from elsewhere.

I'd gone gluten-lite before being tested so my results were negative, although I'm sure gluten is bad for me and I'll never go back on for a test.

Good luck and welcome!

kendon0015 Rookie
kendon0015
Posted
  • Author

Just came home to a message from my doctor....one stool sample came back positive and he wants to treat me right away. Positive for what I don't know yet, but at least that may be all or part of my problem. i have to call him tomorrow.

kendon0015 Rookie
kendon0015
Posted
  • Author

I've got a C difficile infection and will be treated for 10 days with Flagyl and probiotics, which I have been taking for months anyway. If I wasn't taking the probiotics, I think I'd be a lot worse! Blood work for gluten intolerance not back yet, but I feel a heck of a lot better without gluten. Wouldn't it be nice if that is all that was wrong with me for the past year? sheesh...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,160
    • Most Online (within 30 mins)
      7,748
    Robyn Newton
    Newest Member
    Robyn Newton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      Hello,  I have seen numerous doctors and they can't seem to pin point why my ttg iga is still mildly elevated at 16-20 even after being gluten free for over 10 years. I follow a very strict diet and don't eat out. All my other blood tests such as ema, DGP IGA / IGG, vitamin levels, CBC, and dexa scan were normal. 
    • knitty kitty
      Probably celiac but also confused

      By knitty kitty · Posted

      HypOthyrOidism is HashimOtO's thyrOiditis.  HypeRthyRoidism is GRaves disease.
    • mermaidluver22
      Some inflammation in ileum with celiac?

      By mermaidluver22 · Posted

      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Help needed

      By nanny marley · Posted

      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      Some inflammation in ileum with celiac?

      By Scott Adams · Posted

      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
×
×
  • Create New...