Endoscopy Question

[cavetroll]

Hi everyone,

Just over a month ago I had a blood test for gluten allergy. I asked my dermatologist for this as I have severe psoriasis and had heard that diet can play a part, especially wheat. I was surprised that the blood test came back strongly positive for gluten allergy. My GP seems to think it's very unlikely that the endoscopy results will be negative as my blood test was such a strong positive. I have had no gastric symptoms however.

I have been gluten free for the last month and not really noticed much difference apart from what I assume was a withdrawal reaction where after a few days I became very tearful, angry and forgetful, but this passed after a few days. My skin is as bad as ever My GP said it would be at least 6 months before my endoscopy and biopsy but the hospital have phoned and asked me to come in next week.

So my question is really should I go back to eating gluten for the next week before the test? Or is a month gluten free not going to have made much difference? I dont really want to go back now I know I am allergic, but I will do if it will mean not getting false negative endoscopy results.

Thanks for reading, this forum has been great in these weird few weeks after blood test results.

Cavetroll xxx

[ravenwoodglass]

If your blood tests were positive you are celiac. It is quite possible that with a month gluten free you are going to get a false negative on the biopsy. It would be a good idea to go back on gluten but just a week may not be enough. It does take time for us to heal and for issues with skin and other organs to resolve so after your endo is done go back on the diet. You don't need to wait for the results. Be aware that you may become ill when you add gluten back in even though you had no gut symptoms before. Let the doctor know of any reactions you have to adding back in gluten even if they are not gut related.

[divamomma]

Which test did you have? IgE for allergies or TTG IgA for celiac?

[Lisa]

Eliminating gluten from your diet can be very complicated. All gluten must be removed to see if a dietary improvement can be marked.

Cosmetics, lotions, lipsticks/lip balms and shared kitchen ware as in toasters, condiments with double dipping (a shared jar of mayo or peanut butter). I don't think that I have found a medicine, that had gluten, but yes...also a consideration.

It took me months before I had the "diet" down and felt 100% confident.

As mentioned, continue to consume gluten until all possible testing is done.

Have your allergist test you for DH, it is closely associated with Celiac Diease:

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[cavetroll]

thanks for the replies! I've got a week and a half before my gastroscopy so will go back on gluten until then. I dont know which blood test I had, all I know is the dermatologist ordered a test and I got a letter back saying the test showed I was allergic to gluten and to go see my GP for a referral to gastro. I was told it would be a long wait for a biopsy but seems they want to do it asap, which is great. I am also vegan so being able to see a dietician sooner rather than later would be good. Lots to learn though, didn't even think of gluten in toiletries!

[nora-n]

I think you should go back on gluten before the biopsy, and can you get another one some weeks later if by chance this one is negative?

Was it the antigliadin IgA and /or IgG that was highly positive?

Celiac is not an allergy, those reactions and tests are IgE, but often they test the antigliadin antibodies too when allergy testing for foodstuffs.

Have you heard about Dermatitis Herpetiformis?