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Eating Gluten For Labs

glutenfreemamax2

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glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

Is 14 days enough to show on labs, and how much gluten do I need to eat?

I've done the gluten challenge before, but could only get 3 weeks in before I was so miserable.

I looser insurance at the end of the month. I wanted to do it before I lost it if it's enough time. Also- does insurance cover the gene test?

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Is 14 days enough to show on labs, and how much gluten do I need to eat?

I've done the gluten challenge before, but could only get 3 weeks in before I was so miserable.

I looser insurance at the end of the month. I wanted to do it before I lost it if it's enough time. Also- does insurance cover the gene test?

If you have been gluten-free for a while then NO. The bare minimum is 6 weeks, but the more common recomendations I have seen is 3 months. That's eating the equivalent of 3 to 4 slices of bread a day for 3 months. If you can only get so far in without feeling miserable then you already have your answer that you need to be gluten-free. Why put yourself through the misery for an official diagnosis, especially if you are going to be without insurance soon? In the US it can be hard to get insurance for some people with celiac as a pre-existing condition. I would just self diagnose as Gluten intolerant and stay gluten-free if I were you.

As far as the gene tests you will have to check with your individual insurance company. Many companies do not cover the gene test but some will.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted
  • Author

Unless I have a diagnosis I won't have support :-(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Unless I have a diagnosis I won't have support :-(

If you are desperate for some positive tests you might look into Enterolab. Supposedly you can test with them with less gluten in your system because they test via a stool sample test. However, they are NOT covered by insurance (at least i have never heard of an insurance covering them) and technically they do not diagnose celiac disease. They will only tell you if you have a gluten sensitivity. They also have gene tests. You can send away for the test kit without a dr.

Who is it that will not support you if you don't have a diagnosis? It is nobodies business but your own whether or not you had positive blood tests for celiac. You can simply tell most people your DR strongly reccommended a gluten-free diet for life and your symptoms are very bad if you eat gluten.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted
  • Author

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

Show them this link about testing from the celiac center in Chicago:

Open Original Shared Link

The first few sentences on the second page say:

"Antibody tests are only accurate when a patient is on a gluten-containing diet. Those concerned about celiac disease are strongly discouraged from starting a gluten-free diet without having had a firm diagnosis. Any change in the diet, even for as little as a month or two, can complicate the diagnostic process."

If this is your extended family then the next time you do get testing tell them it was positive regardless of the result. If this is your spouse causing your grief then I think you may need some counseling. I would not lie to my spouse about this but my spouse supports me even without a piece of paper--he saw the dramatic difference in my health after I went gluten-free and is very good about helping me stay that way.

eatmeat4good Enthusiast
eatmeat4good
Posted

My spouse didn't believe me...divorced me for being sick when the Dr.'s didn't think it was anything significant.

My family didn't believe me...thought I was just depressed and making things up.

My doctors didn't believe me...thought it was mental, an eating disorder, neurotic excoriation and fibromyalgia.

In the end, the only thing that mattered was that I believed me...after I read ab out Celiac on Celiac.com.

None of them really believe me still....but I am ok with that.

I eat gluten free and I am healthy for the first time in years...

It is so well worth it.

The only support you need is from the hand that puts food in your mouth.

You can do it.

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Skylark Collaborator
Skylark
Posted

My family is not supportive. They think I'm being difficult. I had labs done but I had been gluten-free for almost a month prior. Family says labs were negative and me being gluten free has nothing to do with it. Even all the nurses in my family say that, so its lonley old me battling everyone.

You may be gluten intolerant rather than celiac. If that's the case, you won't ever show anything on labs. This talks some about Faesano's research on gluten sensitivity.

Open Original Shared Link

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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