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Lyme Testing


bny06

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bny06 Apprentice

Good evening all! For those of you that have done the lyme testing, how did yall go about it?? Did yall use that Ignex lab? and if so do you take the forms to your dr or a lab or who draws the blood ships it orders the tests etc?? From what I have been reading, it looks like that's the lab that should be performing the tests.. I don't want to have my dr run them through their lab just to have them inaccurate.. I have wierd neuro/muscle twitching headache issues.. could be all celiac.. but the more I read on here, the more I wonder if I should also rule out Lyme especially since I lived in the Northeast for a while.. Thanks so much for ANY info!


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AVR1962 Collaborator

I was tested in the lab with a regular blood test. The nuero issues with Lyme disease, MS, hypercalcemia just to mention a few are very similiar. I went thru all the testing as docs were trying to figure out why I was having such issues. I live in an area where we do have tick problems and infact one of my neighb ors had Lyme disease several years back so I too was concerned. It was actually a relief to get the results so definately no harm in getting the test.

This might not be your situation but because you mention odd nuero issues I'll put this out to you and see if you can identify: Irritability and dizziness or vertigo, crawling sensation on skin, joint pain, poor concentration, memory problems can be a result of a vit D deficiency

Tingling in hands or feet, hot feet, anemia, nerve damage, buzzing in ears, neuropathy issues can be a vit B deficiency. I have alot of these issues and use WSN Nerve Support Formula (4 daily) each contain thiamine- 103mg, Methyl B12- 1000 mg, B2- 2 mg, B6- 2 mg, folic acid- 100 mcg, B3- 250 IU

Fatigue, disturbed sleep/insomnia, muscle twitching, muscle contraction magnesium is beneficial.

Zinc supports immune system, hair loss, taste.

Potassium regulates nerve transmissions and muscle contractions, restless legs, charlie horses

These, calcium and iron are common deficiencies with celiacs.

captaincrab55 Collaborator

Good evening all! For those of you that have done the lyme testing, how did yall go about it?? Did yall use that Ignex lab? and if so do you take the forms to your dr or a lab or who draws the blood ships it orders the tests etc?? From what I have been reading, it looks like that's the lab that should be performing the tests.. I don't want to have my dr run them through their lab just to have them inaccurate.. I have wierd neuro/muscle twitching headache issues.. could be all celiac.. but the more I read on here, the more I wonder if I should also rule out Lyme especially since I lived in the Northeast for a while.. Thanks so much for ANY info!

bny06, Living in Maryland and having so many Lyme symptoms, I was tested yearly for it... Some years I was tested twice and all tests were combined with other lab work... Since being diagnosed with Celiac in June of 09. most of the Lyme type symptons have vanished... It may just take some time to resolve all issues...

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      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
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      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
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