Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New Here - Have A Few Questions


wagongirl

Recommended Posts

wagongirl Newbie

Hi, all...I will keep this short. Just had an endoscopy for upper right quadrant & belly button region pain. It came back positive for Celiac. My symptoms are pretty mild compared to most people, I think...bloating, moodiness, anxiety, occasional hives. I'm a 38-year-old active & weight-appropriate female. This pain/pinching feeling started about three weeks ago and it's not cramping...it's more like something is scratching the inside of my body, sort of a "niggling" feeling. It comes and goes and is not severe. I'm going in for blood work & a CT scan this week. My questions are:

1. What additional tests (if any) should I make sure the gastroenterologist orders? I've seen some people mentioning the camera pill. I'm extremely nervous about having some type of malignancy, so that's why I want to make sure I'm proactive.

2. I plan on going gluten-free as soon as my blood tests are done tomorrow. Does anyone have a good recommendation for a gluten-free cookbook? I'm an omnivore.

3. Anything else I should be aware of aside from gluten-free prep for the CT?

Thanks for your help in advance!! I've been lurking this site since the procedure and it's encouraging to find that so many are having a positive gluten-free experience!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Endoscopy is pretty much it for testing for celiac disease.

I'm sure others will chime in with books, but in the mean time, try searching the forum - you'll find some awesome recipes. :)

And welcome to the group!

Celtic Queen Explorer

I can't recommend a particular cookbook, but there are a ton of blogs with recipes on-line. Do a search for Gluten Free Goddess' blog. She's a chef and has posted tons of yummy looking recipes on line. There's a link here on the board someone put up recently about their favorite gluten-free blogs. Most of the gluten free blogs have lots of recipes. I still use my old cookbooks too - just avoiding those recipes that have gluten items or making substitutions as needed (like gluten-free tamari soy sauce instead of regular). Just be careful when you're baking. Most gluten-free flours don't react the same as regular flour. So if you're going to bake, you'll probably want a recipe that's been created gluten-free, instead of trying to substitute gluten-free flour in a regular baking recipe.

Cathey Apprentice

Thank you Celtic I googled and found it,now in my favorites. I too am a newbie (blood and scope confirmed). I did order 2 Gluten Free Bread Machine Books. I'm throwing out the old machine concerned w/ cross contamination. Trial and error I'm not happy w/ the bread I'm buying. I did find Udi's brand @ Trader Joe's and not bad. I have thrown out 3 loaves or bread, 1 pkg of English Muffins,1 pkg. buns and 1 pkg. of muffins.

wagongirl Newbie

I can't recommend a particular cookbook, but there are a ton of blogs with recipes on-line. Do a search for Gluten Free Goddess' blog. She's a chef and has posted tons of yummy looking recipes on line. There's a link here on the board someone put up recently about their favorite gluten-free blogs. Most of the gluten free blogs have lots of recipes. I still use my old cookbooks too - just avoiding those recipes that have gluten items or making substitutions as needed (like gluten-free tamari soy sauce instead of regular). Just be careful when you're baking. Most gluten-free flours don't react the same as regular flour. So if you're going to bake, you'll probably want a recipe that's been created gluten-free, instead of trying to substitute gluten-free flour in a regular baking recipe.

Thank you so much!! I took the advice of another poster and didn't run out and buy a bunch of gluten-free stuff....I'm sticking with proteins, fruit, veggies, rice, salad, corn chex for now and will gradually add in some gluten-free items. Today is day 3 and I feel good....the main issue is the gnawing pain in my mid-abdomen. It seems to be getting worse instead of better =(...it's actually causing me a lot of worry!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,761
    • Most Online (within 30 mins)
      7,748

    Manuel
    Newest Member
    Manuel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.