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What Do You Think? Entero Lab Results


Familytradition

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Familytradition Rookie

So I am new here but I have been reading off and on here for a very long time. I figured I would throw out my Entero Lab test results to see what you all might think. Does it seem to be Celiac or just Gluten Intolerance? (The Million Dollar Question - you couldn't pay me that much to go back on gluten now for 'official diagnosis'!)

A little history...

I have been back & forth with gluten free (elimination diet) since approximately September 2007 (has it really been 4 years??). I actually eliminated gluten, dairy, soy, sugar, corn and probably more. I was only on this diet for about a month before I got pregnant and stopped because I was starving and tired of being limited in my diet. Fast forward to when that baby was born... He had reflux and barely slept at all during the day. He seemed miserable all the time and I suspected it was food related (my oldest son has multiple life-threatening food allergies but this son wasn't having any reactions like those) all along but never took the plunge back to gluten free until the end 2009/beginning 2010. Lo & behold, I was pregnant again within a month (seeing a trend here yet?). I initially stayed gluten free for a while during my pregnancy but then again saw the convenience of eating 'regular' so I dropped it again. After giving birth to my third son, I immediately starting seeing the same miserable, reflux baby I had seen before and slowly started eliminating gluten and dairy again. It quickly changed the way we all felt (my sons & I). I also ordered the Entero Lab in Feb 2011 and have had the following results since March 2011.

Fecal Anti-gliadin IgA 87 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 12 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 1400 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


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Takala Enthusiast

Technically, you are gluten intolerant, because you have not been formally diagnosed by a medical physician who did a biopsy of your small intestines and saw damage. You might even be celiac, but there's no seal of Medical Approval

pricklypear1971 Community Regular

I'm a halfy, too.

Half on the dq2, half on the dq8, and one hit on the dq9.

I have an Enterolab kit I haven't sent in yet. I had a hard time with my last lab results, mentally...so I'm procrastinating.

Skylark Collaborator

The TTG is so low it's hard to be sure it's a true positive. You're sure on the way to celiac if you're not.

Mari Enthusiast

I think it is clear from your lab tests and symptoms that you have Celiac Sprue. I had an elevated antigladin IgA but a normal TTG blood test. I had floating stools so I had sprue. I read that people with flattened villi would often show a normal TTG so if that test is used for diagnosis it misses some people who have extensive flattening of the villi. If you email enterolab they will tell you more about their TTG assay. Any elevation of the TTG antibodies is considered a positive test, even such a small elevation as you had.

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    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
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