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TTNOGluten

By TTNOGluten
in Coping with Celiac Disease

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TTNOGluten Explorer
TTNOGluten
Posted

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.

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CR5442 Contributor
CR5442
Posted

Hi there, this is a really good question! I am dealing with this right now. Before you get any gallbladder surgery perhaps try and treat for congested liver. I have had this pain on and off for years but have it worse now as have kicked coffee out of my diet. Coffee was acting as my 'bitters' which in herbal/TCM terms help the flow of bile. Bea/Yolo on here suggested Dandelion, which I have tried and is awesome at getting things to flow. It is quite drying so I would suggest using it with a moistening herb - probably something like Licorice. Herbs take a while to work so start slowly and tweak to see if this makes a difference. What I do is take the dandelion root in tea form - powdered from a capsule is safest (must be the root) about 30 mins before eating. After eating I sit reclined in a chair and then after a while I start to feel the bile flowing and the pain under the right rib cage and to my right shoulder starts to dissappear! I guess it will take a while of treating to get things back to the way they should be. Celiacs probably have thickened bile because of the excess toxins and leaky gut allowing toxins and bile back to the liver in quantities that are higher than normal.

Hope you get some other suggestions too - there are some extremely knowledgeable people on here!

ravenwoodglass Mentor
ravenwoodglass
Posted

I would get that pain until I eliminated soy. Pepto Bismal would help with that for me.

If you haven't considered either dairy (casien) or soy as a possible issue you may want to eliminate them and see if it helps.

CR5442 Contributor
CR5442
Posted

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.

Cramping aching in the mid-back sounds like spleen. Have you seen an acupuncturist? They may be able to help!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I've been having the gb-like pain in my upper right quadrant for months. It was one of my strongest symptoms before being DXed. I got a tingling sensation in my right shoulder blade quite often too, after eating. My Dr. said the pain and tingling in my back was most likely caused by my gb irritating a nerve that runs through that area. My issures haven't resolved yet. I've been gluten-free for about 3.5 months.

I've heard a lot of people with Celiac have gallbladder issues. If you can tolerate it just wait it out and see if it resolves on the gluten-free diet?

There's also a gall bladder friendly diet you could try?

Open Original Shared Link

I tried the beet sald recipe and I found it pretty tasty.

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    • Mmoc
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      By Mmoc · Posted

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    • Aretaeus Cappadocia
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      By Aretaeus Cappadocia · Posted

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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
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