Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


collgwg

Recommended Posts

collgwg Contributor

it appears that my body is reacting to so many food that my safe list only consits of chicken haddock onion garlic cauliflower lacteze milk sea salt pepper agave nectar rice chex blue berries belkin style yogurt and i think that is pritty much it

now my dr said i should be taking a multi vit probiotic b 12 serc RX zantac RX and cholesteramine and dicetel

now to me right now i think taking all of this will up set my digestive system even more

the allergy dr says to follow a yeast free diet BUT i cant do nightshade gluten soy lactose egg and all the other veggies cause some allergy probs

i was hosplised april 2nd with a suver blow out i got really dehydrated i could not keep fluids or food in so i had sevral tests and scans and the only thing that they could determine was there was a bactrial infection and to go home and follow a strict diet well since then the diet bacame so strict that im not consumeing much and my weight went from 190-148 in a way thats not a bad thing i look great but my guts feel like mush

i am at the point i have no idea what to do i go away from seeing my dr more frustarated after seeing her than before i went in and it seems like she wants to give me a pill for the symptoms but not deal with why is this happening

i feel like im going in circles any imput would be wonderful thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

it appears that my body is reacting to so many food that my safe list only consits of chicken haddock onion garlic cauliflower lacteze milk sea salt pepper agave nectar rice chex blue berries belkin style yogurt and i think that is pritty much it

now my dr said i should be taking a multi vit probiotic b 12 serc RX zantac RX and cholesteramine and dicetel

now to me right now i think taking all of this will up set my digestive system even more

the allergy dr says to follow a yeast free diet BUT i cant do nightshade gluten soy lactose egg and all the other veggies cause some allergy probs

i was hosplised april 2nd with a suver blow out i got really dehydrated i could not keep fluids or food in so i had sevral tests and scans and the only thing that they could determine was there was a bactrial infection and to go home and follow a strict diet well since then the diet bacame so strict that im not consumeing much and my weight went from 190-148 in a way thats not a bad thing i look great but my guts feel like mush

i am at the point i have no idea what to do i go away from seeing my dr more frustarated after seeing her than before i went in and it seems like she wants to give me a pill for the symptoms but not deal with why is this happening

i feel like im going in circles any imput would be wonderful thanks

Sorry you're having such a rough time. Our bodies are realy really amazing and they try very hard to repair themselves but when overtasked the healing takes time. If you can do as your doc has suggested I think his advise is good, and hopefully by adding these things to your routine more healing will come. Good thing is you know what you can eat. You may have to stick with that until your system will allow for more. Take care of yourself and be patient.

Bubba's Mom Enthusiast

It's frustrating isn't it?! Get the RXs the Dr ordered. They may help to heal your upset system a bit faster?

The limited diet is pretty boring, but you should be able to add more back in once you've healed.

I'm like you..wanting to be healed and get on with things. I have a lot of restrictions right now too.

I guess it took a while for us to be in this shape..and it will take a while to get sorted out? :(

collgwg Contributor

thank you both for your reply's

i was able to hold down the multi vitiman and the probiotic so thats good

i will be able to start the other rx tomorrow so ill see how the ol body likes that i also have to get grocries im going to try coconut oil avacado lettuce squash and im going to try ground flax buscits and it calls for shortening

what would be the same as shortening but healthier and easier on the gut ?

mushroom Proficient

You could try soy-free Earth Balance for your biscuits. You may have to adjust the amount depending on experimentation. And you might have to refrigerate/freeze the dough a little before baking since the Earth Balance is a different consistency from shortening (softer). The alternative would be an oil you tolerate since it seems like dairy is out.

Glad that you were able to tolerate the multi and the probiotic. Keep it up and you WILL get there -- it just may take longer than you expected :(

collgwg Contributor

wow mushroom reading your free foods makes me really wonder what do YOU EAT in a run of a day or even week i would love to take you shopping with me today lol

this is going to be so challangeing i feel like i wonder the store blind thinking that everthing i look at i cant eat gurrrrrr

mushroom Proficient

Once you get used to thinking about what you can eat, rather than what you can't, it's really much easier. You don't need to walk the whole supermarket wondering what to eat - you just need to walk around the perimeter where they keep the naturally gluten free whole foods and make your selections from there - chicken, fin fish, veggies, fruit. You can venture into the middle for things like rice but don't mess around with the gluten free processed foods until you're much further down the road. Play a game - pretend when you are in the supermarket that you are a caveman out hunting wild game, fruits, berries - anything naturallly edible (except wheat, barley and rye :ph34r: ). Now some of these things you may not tolerate at first but they should be the first things you try to add in, like nuts, dates, raisins - not the gluten free cookies :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.