Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


collgwg

Recommended Posts

collgwg Contributor

it appears that my body is reacting to so many food that my safe list only consits of chicken haddock onion garlic cauliflower lacteze milk sea salt pepper agave nectar rice chex blue berries belkin style yogurt and i think that is pritty much it

now my dr said i should be taking a multi vit probiotic b 12 serc RX zantac RX and cholesteramine and dicetel

now to me right now i think taking all of this will up set my digestive system even more

the allergy dr says to follow a yeast free diet BUT i cant do nightshade gluten soy lactose egg and all the other veggies cause some allergy probs

i was hosplised april 2nd with a suver blow out i got really dehydrated i could not keep fluids or food in so i had sevral tests and scans and the only thing that they could determine was there was a bactrial infection and to go home and follow a strict diet well since then the diet bacame so strict that im not consumeing much and my weight went from 190-148 in a way thats not a bad thing i look great but my guts feel like mush

i am at the point i have no idea what to do i go away from seeing my dr more frustarated after seeing her than before i went in and it seems like she wants to give me a pill for the symptoms but not deal with why is this happening

i feel like im going in circles any imput would be wonderful thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

it appears that my body is reacting to so many food that my safe list only consits of chicken haddock onion garlic cauliflower lacteze milk sea salt pepper agave nectar rice chex blue berries belkin style yogurt and i think that is pritty much it

now my dr said i should be taking a multi vit probiotic b 12 serc RX zantac RX and cholesteramine and dicetel

now to me right now i think taking all of this will up set my digestive system even more

the allergy dr says to follow a yeast free diet BUT i cant do nightshade gluten soy lactose egg and all the other veggies cause some allergy probs

i was hosplised april 2nd with a suver blow out i got really dehydrated i could not keep fluids or food in so i had sevral tests and scans and the only thing that they could determine was there was a bactrial infection and to go home and follow a strict diet well since then the diet bacame so strict that im not consumeing much and my weight went from 190-148 in a way thats not a bad thing i look great but my guts feel like mush

i am at the point i have no idea what to do i go away from seeing my dr more frustarated after seeing her than before i went in and it seems like she wants to give me a pill for the symptoms but not deal with why is this happening

i feel like im going in circles any imput would be wonderful thanks

Sorry you're having such a rough time. Our bodies are realy really amazing and they try very hard to repair themselves but when overtasked the healing takes time. If you can do as your doc has suggested I think his advise is good, and hopefully by adding these things to your routine more healing will come. Good thing is you know what you can eat. You may have to stick with that until your system will allow for more. Take care of yourself and be patient.

Bubba's Mom Enthusiast

It's frustrating isn't it?! Get the RXs the Dr ordered. They may help to heal your upset system a bit faster?

The limited diet is pretty boring, but you should be able to add more back in once you've healed.

I'm like you..wanting to be healed and get on with things. I have a lot of restrictions right now too.

I guess it took a while for us to be in this shape..and it will take a while to get sorted out? :(

collgwg Contributor

thank you both for your reply's

i was able to hold down the multi vitiman and the probiotic so thats good

i will be able to start the other rx tomorrow so ill see how the ol body likes that i also have to get grocries im going to try coconut oil avacado lettuce squash and im going to try ground flax buscits and it calls for shortening

what would be the same as shortening but healthier and easier on the gut ?

mushroom Proficient

You could try soy-free Earth Balance for your biscuits. You may have to adjust the amount depending on experimentation. And you might have to refrigerate/freeze the dough a little before baking since the Earth Balance is a different consistency from shortening (softer). The alternative would be an oil you tolerate since it seems like dairy is out.

Glad that you were able to tolerate the multi and the probiotic. Keep it up and you WILL get there -- it just may take longer than you expected :(

collgwg Contributor

wow mushroom reading your free foods makes me really wonder what do YOU EAT in a run of a day or even week i would love to take you shopping with me today lol

this is going to be so challangeing i feel like i wonder the store blind thinking that everthing i look at i cant eat gurrrrrr

mushroom Proficient

Once you get used to thinking about what you can eat, rather than what you can't, it's really much easier. You don't need to walk the whole supermarket wondering what to eat - you just need to walk around the perimeter where they keep the naturally gluten free whole foods and make your selections from there - chicken, fin fish, veggies, fruit. You can venture into the middle for things like rice but don't mess around with the gluten free processed foods until you're much further down the road. Play a game - pretend when you are in the supermarket that you are a caveman out hunting wild game, fruits, berries - anything naturallly edible (except wheat, barley and rye :ph34r: ). Now some of these things you may not tolerate at first but they should be the first things you try to add in, like nuts, dates, raisins - not the gluten free cookies :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - miguel54b replied to Mrs. Cedrone's topic in Related Issues & Disorders
      7

      Canker sores

    2. - miguel54b posted a topic in Related Issues & Disorders
      0

      Body dysmorphia experience

    3. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    4. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
    • miguel54b
      Body dysmorphia experience. When I was at the worst of my gluten problem I use to get chronic constipation; I would spend long time sitting on the toilet. One day as I was tired of sitting, I rested my head on my hands and my elbows on my knees, as soon as I felt the pressure of my elbows on my knees the perception of my body changed to that of a tarantula; I visualized and it felt real. The perception went away as soon as I removed the pressure on my knees, I deducted that the pressure of my elbows on the knees caused the sensation, so I repeated the position and the sensation of having the body of a tarantula happened each time. I have not had that experience since then because I started a gluten-free diet short after. I wonder if those people that look distorted to themselves in the mirror could have something similar but with the responsible sensory contacts located on their feet. I want to document this experience because it might help some research or others, it sounds crazy but I feel the right thing to do is to share it.    
    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.