Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group In Charleston, Sc?

coolpawduke

Recommended Posts

coolpawduke Newbie
coolpawduke
Posted

Does anyone know of a support group in the Charleston, SC area? I just moved to Mt. Pleasant at the end of December. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Hi, this is what I found in SC (right from this site :) ). I am not sure if it is close to you or not.... I hope it is helpful!!!

South Carolina

Columbia - Support Group

Contact 1: Peggy Smith

Palmetto Celiac Support Group

1508 Anthony Drive

West Columbia, SC 29172

Tel: (803) 775-9466 or (803) 755-7291

E-mail: PSmithCola@AOL.COM

Florence - Resource:

Contact: Lea E. Marshall

1214 Hillside Avenue

Florence, SC 29505

Tel: (803) 665-6290

coolpawduke Newbie
coolpawduke
Posted
  • Author

Thanks for the info! I'm still looking for something a little closer. Columbia is about 2 hours away. Thanks again though!

  • 10 months later...
Nat'sMOM Newbie
Nat'sMOM
Posted

My daughter has celiac disease and we live in Goose Creek, SC.....Have you had any luck finding a support group in the area? I have not, but maybe we could get together.

Kristi

  • 1 month later...
Paiton's mom Newbie
Paiton's mom
Posted

Hi to those in the Charleston, SC area. I've been trying to find others with Celiac so that my daughter and I could start a support group. We live in N. Charleston, and would love to hear from anyone who would like to form a group.

Just drop me a line and we can set up a meeting.

Thanks,

Cathey

  • 4 months later...
Skijoe Newbie
Skijoe
Posted
Does anyone know of a support group in the Charleston, SC area?  I just moved to Mt. Pleasant at the end of December.  Thanks!

<{POST_SNAPBACK}>

Hi

There is a support group started by Sara Hinkle,RD of Roper St Francis hospital.She is a Dietician at the hospital

Her phone number is 402 1099.

There is a scheduled meeting at 6:00 PM Aug. 15 at the St Francis Mall Classroom

Joe

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Have you guys found any gluten-free restaurants in Charleston or Columbia, South Carolina?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
luckycharm Newbie
luckycharm
Posted

Hi,

I am new to this board. I had a blood test done last week and waiting for the results. My Neurologist is insisting that I have celiac disease, but my GI dr. is saying that he doesnt think so. I also have MS too. But I chose this board because I saw Chareltson SC. My husband is in the military and we are moving to Charleston in March 06. I was very happy to see that there is a support group for celiac disease in the local area. I would love to talk to ya'all about things. Thanks and I hope that ya'all have a wonderful day. Hope to hear from ya'all soon...

luckycharm

  • 1 month later...
Brambledoula Newbie
Brambledoula
Posted

Hi! I'm new to this group, my 4 year old son has celiac and I'd love to meet some people! We live in Ladson. Will there be another of the support groups at roper?

  • 2 weeks later...
gluegluten Newbie
gluegluten
Posted

i am from charleston.

m/22

i am fairly new to this diet...my mom thinks i may have celiac disease, so i am trying the gluten-free / wheat free diet, to see if i gain weight.

gluegluten Newbie
gluegluten
Posted
Have you guys found any gluten-free restaurants in Charleston or Columbia, South Carolina?

<{POST_SNAPBACK}>

i'd suggest going to whole foods [it's a grocery store]...man i found a lot of good stuff there.

-s

  • 3 weeks later...
mcsteffi Rookie
mcsteffi
Posted

I would love to meet anyone in the charleston area with celiac. My 23 month old son was just dignosed and I am overwhelmed! I am trying to make sure he gets the correct foods and it is stressing me out. A support group is just what I need! Has anyone been to a meeting in this area? Are they helpful?

Stef.

gluegluten Newbie
gluegluten
Posted
I would love to meet anyone in the charleston area with celiac.  My 23 month old son was just dignosed and I am overwhelmed!  I am trying to make sure he gets the correct foods and it is stressing me out.  A support group is just what I need!  Has anyone been to a meeting in this area?  Are they helpful?

Stef.

<{POST_SNAPBACK}>

i am new to celiac disease myself, and eating gluten-free...i am from the charleston are...

we need to get a group going.

i am 23 years old.

-s

mcsteffi Rookie
mcsteffi
Posted
i am new to celiac disease myself, and eating gluten-free...i am from the charleston are...

we need to get a group going.

i am 23 years old.

-s

<{POST_SNAPBACK}>

I talked to a lady at Earth Fare the other day and she said she thought there is a group in Charleston but she didnt have the info right there. I told her I would come back and check to see if she found it. I havent heard of anything else in this area.

Stephanie

gluegluten Newbie
gluegluten
Posted

maybe we should start one @ Whole Foods in Mt. Pleasant since they have a lot of gluten-free items.

mcsteffi Rookie
mcsteffi
Posted
maybe we should start one @ Whole Foods in Mt. Pleasant since they have a lot of gluten-free items.

<{POST_SNAPBACK}>

My sons dr just refered us to the dietician from St. Francis listed in this thread. I am going to try to make an appt w/ her next week or the first of the following week. The dr. did mention that she had a celiac support group. If I find out any more information about the groups after meeting w/ her I will post it.

gluegluten Newbie
gluegluten
Posted
I talked to a lady at Earth Fare the other day and she said she thought there is a group in Charleston but she didnt have the info right there.  I told her I would come back and check to see if she found it.  I havent heard of anything else in this area. 

Stephanie

<{POST_SNAPBACK}>

every even number month.... at roper hospital on the 3rd monday ... of every month...

so the third monday in december is when the next meeting is. just giving you a heads up.

mcsteffi Rookie
mcsteffi
Posted
every even number month.... at roper hospital on the 3rd monday ...  of every month...

so the third monday in december is when the next meeting is. just giving you a heads up.

<{POST_SNAPBACK}>

So have you been to one of those meetings? Are they any good?

  • 3 weeks later...
gluegluten Newbie
gluegluten
Posted
So have you been to one of those meetings?  Are they any good?

<{POST_SNAPBACK}>

i haven't been to one of those meetings, but i plan on going to one to see how they are.

  • 2 weeks later...
mcsteffi Rookie
mcsteffi
Posted
i haven't been to one of those meetings, but i plan on going to one to see how they are.

Hey!

I just got the flyer for the meeting in December. Its the 12th. I am going to try really hard to go but being so close to the holidays I might not be able to. Hope to see you there!

stef.

stephanie

  • 2 years later...
DSKchucktown Newbie
DSKchucktown
Posted

I am new to Charleston and looking for a good GI doctor. I have not been tested to confirm I have celiac disease, but my Mom and brother both have the disease and I have a strong suspicion I do as well. If anyone can recommend a doctor with experience dealing with celiacs in the Charleston area, I would appreciate it.

thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,111
    • Most Online (within 30 mins)
      7,748
    Donald Carr
    Newest Member
    Donald Carr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.