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Exhaustion, Anemia, Gi/flatulence/headaches

astrologer50

By astrologer50
in Coping with Celiac Disease

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astrologer50 Rookie
astrologer50
Posted

I've just had blood results that show anemia, but went gluten free for 1week now. Have had horrible few months. Exhausted, hardly just getting up/dressed/washed. Months of serious flatuence, headaches and nausea. Finally, symptoms got so bad, starting vomiting, as if my food/body refused to accept food at all. About six months ago started with asthma age 54, everything gone downhill since. Every couple months they double my meds, had 1 asthma attack, vomiting. Also have ongoing migraine,plus compressed disc in kneck affecting nerve endings.

Eggs and cheese can be migraine triggers, but cheese is not so bad now. Doc wants to send me for tests. He put me on iron tablets and said it may take 3-4months to feel better. They want to find out what is making me anemic by putting a camera down my throat and taking a biopsy for celiac - which would mean taking bread beforehand for a while to show up in tests.

within 2-3days of going gluten free, my GI/flatulence gone, nausea gone, headaches radically reduced. So am happy to stay on this although it's going to cost a fortune.

Sourdough bread seems to keep coming up as a good idea. I love bread, cakes and biscuits, but since going gluten free, the substitute bread seems a lot more filling so you eat less of it. I put on over 2stone this last six months to. is sudden weight gain normal?

Am thinking of doing a hair test for intolerances, to idenitfy things properly, any thoughts on this?

My doc gave my some peppermint oil tablets to try 1/2hour before food, which seem to help. also I'm taking the Acidophilus

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AVR1962 Collaborator
AVR1962
Posted

Just remember you have to be eating gluten for at least 2 months prior to testing for celiac. Tests are not real reliable so if they come back negative don't worry. You can go on a gluten-free diet yourself to see if your condition improves. I have a feeling buyt your symptoms that gluten is the problem and I think you will be surprised what happens when you get off and stay off.

astrologer50 Rookie
astrologer50
Posted
  • Author

Just remember you have to be eating gluten for at least 2 months prior to testing for celiac. Tests are not real reliable so if they come back negative don't worry. You can go on a gluten-free diet yourself to see if your condition improves. I have a feeling buyt your symptoms that gluten is the problem and I think you will be surprised what happens when you get off and stay off.

I don't think I can put my body through that again, I was soooo ill to the point of vomiting..I thought just a week or two would be enough to show up. I feel 100% better just after a week on gluten free. It does seem very common to have anemia pre diagnosis from what I've read on here and internet.

What do most people do about bread? do you bake your own? what do you think about gluten free sourdough bread?

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  • Posts

    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      Could this be a new intolerance

      By Scott Adams · Posted

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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