Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ige Positive...where To Go From Here?

Metoo

Recommended Posts

Metoo Enthusiast
Metoo
Posted

I am slightly confused. But I have a call into my family doctor to redo testing for gluten allergy possibly celiac.

I tested positive for IgE, they wanted a 0.04 level, and mine was 0.08, but listed me as Class 0, which Class 0 and 0.08 according to most RAST listings online are both negative, but the paperwork I got clearly listed me as being abnormally high and having a gluten allergy.

So my question is...if you have an IgE could you also possibly have celiac, beyond just an allergy?

My aunt and several cousins can no longer have gluten, though I do not know if they have tested positive for celiac.

I am uninterested in undergoing a biopsy to see (I have a clotting disorder), and I am hoping I can just figure this all out through blood work.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

Did your doctor run a celiac panel (single blood draw) as well? The tests run would be:

tTG IgA

EMA IgA

AGA IgA

AGA IgG

total IgA

DGP (this one is now replacing AGA, it is more specific)

Here is my current understanding:

An IgE reaction is your immune reaction to gluten, where the body attacks the gluten itself. This is a histamine type reaction. Usually IgE reactions give symptoms like runny nose, hives, sinus pressure, swollen tongue, or anaphylaxis. Did they test for gluten or wheat in general? A person can be allergic to wheat but not to gluten, but if you are allergic to gluten you also would react to all other gluten containing grains.

Independent of that is a potential celiac issue. Celiac is a form of gluten intolerance which triggers an autoimmune reaction to gluten, where your body attacks the villi in your small intestine as a result to exposure to gluten. Another manifestation of celiac is Dermatitis Herpitiformus, which is a rash. The diagnostic tool for the rash is to test the clear skin next to the rash itself for the antibodies.

You can have an allergy, celiac, or another form of intolerance. You could also have them all.

In order to test for celiac you must be eating gluten, in consistent and large amounts. Since you have an allergy, you want to be avoiding gluten, however! So, if you have been eating gluten up until now you'll want to get in for your celiac panel ASAP!!! Otherwise you could get a false negative.

However, since the full treatment for celiac is strict avoidance of gluten, and the treatment for an allergy is also strict avoidance, you might be best off just avoiding gluten.

Good luck with your testing!

  • 4 years later...
Wendyb123 Newbie
Wendyb123
Posted

I know this is an old post but hoping for some feedback. Every time i eat wheat, I get a horrible itchy rash.  Face mostly but hands and neck too.  Ige showed abnormal to wheat however, in low range 

celiac panels were negative. Also tested positive for severe nickel allergy. With nickel allergy, I should be able to eat white bread but when I ate pizza the other night... My

rash was horrible.  

thoughts? 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,200
    • Most Online (within 30 mins)
      7,748
    vickymd
    Newest Member
    vickymd
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      It says normal is less than 5. 
    • RMJ
      Is tTG 9 normal after 4 months gluten-free?

      By RMJ · Posted

      The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect.  For example, you might see <2. What is the normal range for your daughter’s test?  Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from more than 100 to 9 in a few months is great! Good job, mom.
    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
×
×
  • Create New...