Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story Of Gluten Poisoning...


Robert M.

Recommended Posts

Robert M. Newbie

Hello, my name is Robert. I'm new to this forum and to the gluten-free lifestyle. With your patience and understanding I'd like to offer my story of how I've arrived here today.

My problems started about a year ago, I started experiencing stomach pain and a rumbly stomach. At the time I figured it was just stress playing havoc with my tummy, like many folks, times have been tough for our family financially. I saw my doctor who immediately put me on Trazadone for stress, but, my symptoms only got worse. I developed horrible acid reflux and was taking prilosec like no tommorow, but the more I injested to help fix the problems the more my body rebelled. My agony came to a head about one month ago, the pain in my gut was almost unbearable, I developed horrible bowel movement patterns, I could barely make it to the restroom after meals on many occasions (sorry if that is too much info.)My joints ached, my fingers and hands would often have a tingling feeling,I had frequent headaches, my world was crumbling around me. Then, just about two weeks ago I began to notice "the fog". My brain felt like it had short- circuited, I was wondering through my life in a daze. I felt like I was detached, like I was looking at life through someone else's eyes. Well, that did it for me, panic set in deep, which only compounded the problem. I nearly had my wife take me to the emergency room one night after a severe attack of anxiety.

I had to do something, nothing that conventional medicine was offering was helping, in fact, it made things worse. I started fitting all the pieces together, I recalled that just before I started having many of these symptoms I had been on a low carb diet. I was amazed at how good I felt not eating bread, but, I didnt put 2 and 2 together at the time.I searched the web for clues and eventually began my gluten free journey.

And now I'm glad to say Ive been gluten free for 12 days and nearly all my symptoms have dissappeared, still have some minor reflux from time to time. I know my body needs more time to heal but if this is the best I get I can easily live with that.

I just wanted to share my story and would welcome comments from those who may have had similiar experiences.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

Hi Robert,

Welcome to the forum.

I'm sure many of us (me certainly) will be curious to know your age (sorry.. personal question but not nearly as bad as our digestive openness :lol:) , any change of diet/circumstances etc.

For example: I found that when I was short of money gluten seemed to fill the "gap"

2 weeks is a very quick "recovery" so be sure to stick with what is working for you. Try to avoid mistakes (or tempations) like I have NOT the past 4 months. They have set me back to the point where it is only the past month that has seen real (mostly mistake and definitely temptation-free) progress.

Di

AVR1962 Collaborator

Welcome Robert! Sounds like you found your answer and I wish you all the best in figuring out the diet and what works for you, we're all a little different in our own needs here and at the same time a great deal of wealth of info among us. If you have not had a vit and mineral bloodwork test, I would request that. It is very common for us to be deficient in certain areas which will cause many of our symptoms. I have been gluten-free for nearly 7 months, did have an ER trip back in Feb that set me on my journey, and doing so so much better. Progress is not over night but it is amazing how you will continue to get better as long as you stay away from the gluten.

Annette

Robert M. Newbie

Hi Robert,

Welcome to the forum.

I'm sure many of us (me certainly) will be curious to know your age (sorry.. personal question but not nearly as bad as our digestive openness :lol:) , any change of diet/circumstances etc.

For example: I found that when I was short of money gluten seemed to fill the "gap"

2 weeks is a very quick "recovery" so be sure to stick with what is working for you. Try to avoid mistakes (or tempations) like I have NOT the past 4 months. They have set me back to the point where it is only the past month that has seen real (mostly mistake and definitely temptation-free) progress.

Di

Hi there, Thanks for your reply. I am a very active 44 year old. Ive been very healthy my entire life (he says knocking on wood). And yes, 2 weeks is a short time but, I really dont consider myself "recovered" just yet. I realize that many people can have very fast relief from many of their symptoms, but, I also fully understand that the healing process could take many months. As far as "set backs", the only issue I've had is when my GI doctor told me that I needed to go back to eating gluten products so he could get the most accurate blood test results and for an endoscopy biopsy. The night after that appointment, I went home and had some pasta and bread for dinner. I got so sick that I had to miss work the next day. So, needless to say I immediately went back to being gluten free and have been fine since. I told the doctor that was all the clinical evidence I needed to confirm my Gluten intolerance. Now, I am able to stay on the diet quite easily because I know how horrible I will feel if I dont. Best of health to you.

Di2011 Enthusiast

Hi there, Thanks for your reply. I am a very active 44 year old. Ive been very healthy my entire life (he says knocking on wood). And yes, 2 weeks is a short time but, I really dont consider myself "recovered" just yet. I realize that many people can have very fast relief from many of their symptoms, but, I also fully understand that the healing process could take many months. As far as "set backs", the only issue I've had is when my GI doctor told me that I needed to go back to eating gluten products so he could get the most accurate blood test results and for an endoscopy biopsy. The night after that appointment, I went home and had some pasta and bread for dinner. I got so sick that I had to miss work the next day. So, needless to say I immediately went back to being gluten free and have been fine since. I told the doctor that was all the clinical evidence I needed to confirm my Gluten intolerance. Now, I am able to stay on the diet quite easily because I know how horrible I will feel if I dont. Best of health to you.

Good on you! Keep well and active!!

AVR1962 Collaborator

Best thing you could have done for yourself. Many of us have had to do the same. I made it to day 12 after being off and just was too sick to continue. Tests are not accurate in the first place and by continuing on the gluten you are only causing yourself more damage than good. I hope you continue to feel better!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748

    BeccaLynn
    Newest Member
    BeccaLynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.