Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Question


azlynn23

Recommended Posts

azlynn23 Rookie

I am a rather unhealthy, 23 year old female with a history of odd eating problems. When I was 13 I started having reactions anytime I ate pizza, especially at school, i'd be running to the bathroom ten minutes back into class and that lasted straight through high school. Even now on occasion if I go to lunch with coworkers and order a sandwhiches, I'm in the bathroom nearly half an hour later.

Also when I was 13 I was diagnosed with mild anorexia which cleared up after a moment of self realization three years later, I never was hospitalized or that severe but I have read studies that show in children gluten disease can show up as anorexia because eating is actually painful for the patient.

Well about six months ago I woke up in the middle of the night puking up blood and bile so my room mate made me go to the urgent care, they suggested I get an Endoscopy which I did about two weeks later but the doctors found nothing. They gave me some potassium tablets since my levels were low and I felt better after two weeks of eating healthier, exercising, and drinking no soda.

I resumed me usually diet of one meal once a day of some grande fast food meal ( generally diary queen, arbies, chipotle, sonic, and pizza) and was fine for another three months. Then about a month ago after eating a chicken strip basket and having a gin a tonic, in the middle of the night I was awake puking up blood all over again. This time I did some research and thought maybe it could be a food allergy so I cut back on gluten, I was starting to feel a lot better then three weeks in, I had a weekend full of gluten followed by a Monday full of uncontrollable puking. I was worried since I had had a few beers the night before but I have never been that sensitive.

So I am trying to figure out if staying gluten free is best or if it could be just my diet in general causing me problems, here are my symptoms;

Depression

Mood swings

Hair loss

Vomiting and constant nausea

Feeling of starving

Inability to eat, difficulty swallowing as if air is trapped

Constitution/diarrhea

Difficulty consentrating

Dehydration

Occasional panic attacks

Restless legs when sleeping

Falling asleep randomly (difficulty sleeping in bed)

I'm very lethargic until I eat and eating is incredibly difficult for me anytime this happens, for the last three weeks I had been noticing relief and now I feel like I'm back to the beginning. So does this sound like gluten and if so are there any ways for me to relieve the pain or at least duration of these attacks, it seems to be two weeks before I'm back to normal.

(Also why would it have disappeared for three months even though I only changed my diet for three weeks, then I became much more sensitive?)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

My symptoms totally come and go for months. Your symptoms all match celiac/gluten intolerance. I would go for a Celiac blood panel...then go gluten free, you need to stick to the diet for at least 6 months for some people to see a difference.

Lisa Mentor

Throwing up blood is serious. First of all, find a new doctor that will address this! Second, take this seriously!

You have to take care of your body better than one meal a day with mega fast food.

I recently lost (as in dead) my totally, talented niece because she was anorexic. She was bulimic and she drank socially and she died. PLEASE be careful.

How can we help you? How can we guide you? :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.