Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Question


azlynn23

Recommended Posts

azlynn23 Rookie

I am a rather unhealthy, 23 year old female with a history of odd eating problems. When I was 13 I started having reactions anytime I ate pizza, especially at school, i'd be running to the bathroom ten minutes back into class and that lasted straight through high school. Even now on occasion if I go to lunch with coworkers and order a sandwhiches, I'm in the bathroom nearly half an hour later.

Also when I was 13 I was diagnosed with mild anorexia which cleared up after a moment of self realization three years later, I never was hospitalized or that severe but I have read studies that show in children gluten disease can show up as anorexia because eating is actually painful for the patient.

Well about six months ago I woke up in the middle of the night puking up blood and bile so my room mate made me go to the urgent care, they suggested I get an Endoscopy which I did about two weeks later but the doctors found nothing. They gave me some potassium tablets since my levels were low and I felt better after two weeks of eating healthier, exercising, and drinking no soda.

I resumed me usually diet of one meal once a day of some grande fast food meal ( generally diary queen, arbies, chipotle, sonic, and pizza) and was fine for another three months. Then about a month ago after eating a chicken strip basket and having a gin a tonic, in the middle of the night I was awake puking up blood all over again. This time I did some research and thought maybe it could be a food allergy so I cut back on gluten, I was starting to feel a lot better then three weeks in, I had a weekend full of gluten followed by a Monday full of uncontrollable puking. I was worried since I had had a few beers the night before but I have never been that sensitive.

So I am trying to figure out if staying gluten free is best or if it could be just my diet in general causing me problems, here are my symptoms;

Depression

Mood swings

Hair loss

Vomiting and constant nausea

Feeling of starving

Inability to eat, difficulty swallowing as if air is trapped

Constitution/diarrhea

Difficulty consentrating

Dehydration

Occasional panic attacks

Restless legs when sleeping

Falling asleep randomly (difficulty sleeping in bed)

I'm very lethargic until I eat and eating is incredibly difficult for me anytime this happens, for the last three weeks I had been noticing relief and now I feel like I'm back to the beginning. So does this sound like gluten and if so are there any ways for me to relieve the pain or at least duration of these attacks, it seems to be two weeks before I'm back to normal.

(Also why would it have disappeared for three months even though I only changed my diet for three weeks, then I became much more sensitive?)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

My symptoms totally come and go for months. Your symptoms all match celiac/gluten intolerance. I would go for a Celiac blood panel...then go gluten free, you need to stick to the diet for at least 6 months for some people to see a difference.

Lisa Mentor

Throwing up blood is serious. First of all, find a new doctor that will address this! Second, take this seriously!

You have to take care of your body better than one meal a day with mega fast food.

I recently lost (as in dead) my totally, talented niece because she was anorexic. She was bulimic and she drank socially and she died. PLEASE be careful.

How can we help you? How can we guide you? :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.