Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Barrett's Esophagus - Gluten Related?


Rick-O-Shay

Recommended Posts

Rick-O-Shay Apprentice

Hello,

3 Years ago I was diagnosed with Barrett's Esophagus via endoscopy biopsy. Does anyone know if this condition is linked to Gluten sensitivity or Celiac?

Thanks,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

My brother in law has celiac disease and BE. He also has Diabetes, another related condition. I don't know of any scientific studies, just his story.

Rick-O-Shay Apprentice

Hmmm. Thanks.

Does he follow a Celiac diet? I was just wondering if over time if he sticks to the diet if the Barrett's will heal up.

sahm-i-am Apprentice

I believe he does. He has had celiac disease since 2003 and they discovered Diabetes at same time. I will text him about BE later today. I know he gets reg checks for it and I do remember him saying it was hard to manage (BE).

Rick-O-Shay Apprentice

Hey sam, did you text your bro?

beebs Enthusiast

I am supposed to have an endo at some point to see what damage my GERD has done. I had it very badly for years...until I went gluten free. Sometimes I need a tum - but I have had no medication for it since going gluten-free. So to answer - GERD can cause BE and Celiac/Gluten Intolerance can cause GERD. Hope that helps!

sahm-i-am Apprentice

Rick,

I did text him but sometimes it takes a few days. He is undergoing a full house renovation and he teaches. He will get back to me - I'll keep bugging him! He needs that sometimes. :-) But I will respond as soon as I hear what he says. It makes sense what beebs said.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

Just heard from BIL - he said the only thing that helped him was medication and it is no longer a problem. He does get it checked every year. So it is hard to say if just gluten free helped him or just meds or both. Not sure if this helps or not.

Rick-O-Shay Apprentice

This is good to know. Thank you.

If gluten causes GERD, and GERD causes BE, then it makes total sense.

I'm not sure if it's heartburn or not, but I wake up in the morning with terrible burning in my stomach all the time. I have eliminated so much and I am on prilosec and carafate... My doctor says I'm just hungry... I don't think hunger is supposed to be a burning pain...

Any idea of how long it took for the GERD to go away after going gluten free? I know everyone is different, so answers may vary.

beebs Enthusiast

For me it was instant - I went gluten-free and the GERD went away that day. I have it really mildly occasionally = but I was medicated for years (which wasn't working) and I haven't been on meds since.

Burning pain that relieves when you eat?? Sounds like it could be Stomach ulcers! Which can also be cause by Celiac!! Have you ever been put on proton pump inhibitors or anything? Do you have any other symptoms - excessive belching or anything like that?? Going gluten free will not fix ulcers - you would still need medication (nexium, parriet etc).

Rick-O-Shay Apprentice

For me it was instant - I went gluten-free and the GERD went away that day. I have it really mildly occasionally = but I was medicated for years (which wasn't working) and I haven't been on meds since.

Burning pain that relieves when you eat?? Sounds like it could be Stomach ulcers! Which can also be cause by Celiac!! Have you ever been put on proton pump inhibitors or anything? Do you have any other symptoms - excessive belching or anything like that?? Going gluten free will not fix ulcers - you would still need medication (nexium, parriet etc).

Yes, I have been diagnosed with ulcers. The burning pain in the AM does go away when I get up, move around, and eat something. I am on prilosec (a PPI) and carafate (to coat the stomach), although I still have the burning. I have another endoscopy scheduled in January :(. Sounds like you have experience with ulcers?

I am hopeing if I go gluten free the ulcers won't come back once they are healed.

Another symptom I have is feeling extra full after eating and nauseous... common with ulcers I believe. Have you had ulcers before?

beebs Enthusiast

Yes- I've had two neg for H.Pylori, haven't had one since going gluten free - my last one was just before I went gluten free took nexium for it and then haven't needed anything since.

Rick-O-Shay Apprentice

Yes- I've had two neg for H.Pylori, haven't had one since going gluten free - my last one was just before I went gluten free took nexium for it and then haven't needed anything since.

Right on. You give me hope! I have been tested for H. Pylori as well, which was negative, and I have been struggling with them ever since. I have tried prevacid, prilosec, nexium (with carafate of course). Since ulcers are slow to heal I'm hoping after a month or two and being gluten free I can keep those nasty things away.

Thanks again beebs!

Do you have heartburn by chance?

beebs Enthusiast

Yeah - severe heartburn (GERD) that I took medication for for years and years and it did nothing. I couldn't drink water - it would make it so much worse and sometimes it wouldn't even go down:( But - all good now that I'm gluten free, no meds needed and GERD is all but gone (have little episodes here and there) . Have you started the gluten-free diet yet??

Rick-O-Shay Apprentice

Yeah - severe heartburn (GERD) that I took medication for for years and years and it did nothing. I couldn't drink water - it would make it so much worse and sometimes it wouldn't even go down:( But - all good now that I'm gluten free, no meds needed and GERD is all but gone (have little episodes here and there) . Have you started the gluten-free diet yet??

Yes, but it has only been about a week, so I need to give it more time. Did it take awhile for you to feel better and begin stopping your medication?

beebs Enthusiast

No - mine is directly related. The day I went gluten free the GERD stopped - if only I had of figured it out ages ago. I need to have an endo to check for Barretts etc. Not looking forward to it!

Also- now if I am glutened the GERD comes back - so totally caused by gluten.

frieze Community Regular

hopefully you are aware the carafate needs to be taken on a totally empty stomach, nothing to eat 2 hours before nor 1 hour after? if there is a chance that the pain you are feeling is esophogeal, the suspension may be a better form. Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.